Recent content by esrich

My husband Eddie has type II and ALS. He still has to take all kinds of meds for the diabetes or it gets way too high. Funny, he developed both diseases at about the same time. Shelly

Extra Hands Delb, Why don't you go ahead and check it out about the Extra Hands. Even if you and your wife are getting along it could give her a break and maybe she wouldn't feel stressed and could maintain a more positive attitude. I think it's free because they are all volunteers. It couldn't...

Have you tried applying for Social Security disability and Medicare?

Just my two cents. Get a restraining order on the wife and kick her out. Get a will leaving everything to a no-kill animal shelter. I think there are some in the DFW area. Contact Extra Hands for ALS. They have volunteers for ALS patients in the Dallas area. I'm sure Seagoville is close enough...

Pound puppies are the best, aren't they? Our little terrier mix came from the pound about 13 years ago. She's about 16 now and she's still our baby. She's loving, cute, good natured and (usually) well behaved, although she is a hamburglar if she has the opportunity.

My husband has ALS. He was in the Marines when he was young, then later in life was in the USAR and Oklahoma NG. While in the National Guard he was deployed to Iraq for 13 months, which is when and where his symptoms started. Shelly, caregiver of Eddie

Yes, some people can live a very long time with ALS. On another forum I belong to there is one guy who has had it for 23 years and another woman who is 82 and was diagnosed in 1959. Yes, 1959. There is hope. Keep a positive attitude and enjoy each day. Laugh a lot. Live a lot. Enjoy the time we...

Mike, excellent link!

http://www.familycordbloodservices.com/

As for equipment and information, check with your area ALS/MDA clinic. Ours gave us a catalog of adaptive devices and also a book that tells all about ALS. It has lots of information in simple terms. That's where my husband found out to get some cowboy boots to help him with foot drop until he...

I found some pants at Penney's for my husband with elastic waist in the back. I think in the catalog they sell full elastic but he can get these up and down without unbuttoning/unzipping. There also dressing tools available to help. Special belts, button hooks, zipper pulls. One website I found...

Jake, there is a clinic in Little Rock that I think would be closer to you. I think it is a 3.5 or 4 hour drive from where you are. If you look on www.alscareproject.org there is a list of clinics in the U.S. Too bad you aren't closer to Oklahoma. The clinic in OKC is great. My husband's...

I'm so sorry for your loss.

I totally agree about keeping your sense of humor. My husband was told to get a walking stick (instead of a cane) so I said in an email to several people that I was going to get him one of those big wooden ones and dress him up like Gandalf in Lord of the Rings. My husband and I apparently are...

Actually the MDA/ALS clinic in OKC (Integris medical clinic? - corner of Western and 44th) does have a support group. I can't remember the meeting schedule but they told us about it when we were there.