Recent content by Eastwood56

Hello all my friends, this morning I received a text that our dear friend Tia, is now in a much better place. My wife knew she was in bad shape because her brother informed us that she just received her last rights. We thought we had the time to make it to their home to say goodbye to her, but...

Sharon, I was going through the forum again and couldn't get over how your response is so close to what is going on with our friends. The husband is burned out and thank goodness for Tia's brother because he is staying with them during this difficult time. The brother does offer some relief...

PIKCKAP, this is your buddy that you see once a week (Eastwood56). Hang in there and walk away when it gets to be too much. Deb indicated that you haven't seen our kitty friend, but rest assure, she is out there taking care of business. We will see you soon (Tuesday) and just remember the...

Well right now, when she tries to speak, we can make out some of her words, however, it is not easy to make the words out all the time. What they have to help out is a laminated piece of paper with the letters of the alphabet on it. Three rows of letters along with some common words like Yes...

Thanks Janis, I will look into this device too. T is very stubborn and although I know she wants to communicate with everyone, she seems offensive to using items that could make her life easier (for everyone).

Hello friends, we just visited our dear friend today with ALS. We are trying to do all we can for both her (T) and her husband (B). When we arrive, we can feel the tension in the air between the two of them. Our approach is to bring laughter into the room and also a break for both of them...

Hi Mike, this is Gary talking to you. My user-id is Eastwood56. Talked to the massage therapist today and he is going to start giving Tia massages twice a week. Starting tomorrow! Hope your flight home was good and that your walking stick arrived OK. Will talk to you soon. Gary

Mike, thanks for the input. I will tread lightly with the husband. I respect him so much and we have developed a trusting friendship that I don't want to jeopardize. Would really like to see him get a representative from ALS to assess the situation. I think he really needs their help and...

My wife and I would definitely do something like this, however, she will not accept anyone's help except his. This is the big part of the problem. He needs to get away and she doesn't want him to let him out of her sight. I believe she doesn't want us to take care of her when she needs to go...

I want to thank you all for your responses so far. It is very hard for my wife and I to sit back and watch this horrible event take place. The husband lost his first wife to cancer and now he is loosing his second wife to ALS. He was the primary caregiver in both situations, however he has...

So if I stay out of it and my friend does something bad to his wife or himself, I should be ok with it? We have been helping him out by fixing meals, giving massages and supporting him with positive talk. They live two hours away from us and each time we visit, the conditions continue to get...

Hello, I have a friend who is the major caregiver to his wife that has ALS. The husband is going to be 67, has a bad back and also is in need of knee surgery. His wife was diagnosed with ALS in September of last year, however her current condition seems as if she is in a stage where her ALS is...