Recent content by CRF8

  1. CRF8

    Dodge wheelchair van for sale----SOLD

    2008 Dodge Caravan SXT, silver- 3.8 V6; AMFM CD MP3 radio, power everything including rear & side doors. EXCELLENT condition the rear load ramp itself is manual but easy & smooth, fit permobil 300 with room to spare, Qstraint lockdown, recent service, still some warranty remaining, new...
  2. CRF8

    PEG Care

    we had to get a dietician referral from Primary care Dr. They ship us syringes, gauze & jevity monthly.
  3. CRF8

    Pulmonologist Visit

    yes, start using it now to get used to it if nothing else. They say it rests the diaphragm
  4. CRF8

    Diaphragm Pacing System

    joel is correct in post above. Al may have some new info. I am unaware of. can you PM me for cost and Dr. contact? We did eventually recover most of the cost from our insurance but it took months and an attorney.
  5. CRF8

    Diaphragm Pacing System

    you have to be able to pass a "sniff test" in order to be eligiable for the DPS. It checks that your diaphram is still able to be stimulated. we did one local & had to repeat at Atlnata hospital the day prior to DPS install. You stand by a screen and they view diaphragm while you inhale (sniff)...
  6. CRF8

    Diaphragm Pacing System

    I suggest you DO NOT rely on your doctors to help you with the DPS decision. Take the initiative to push the issue with them.
  7. CRF8

    Diaphragm Pacing System

    my wife got hers in Atlanta after a lot of research in Oct 2009, we love it...see my posts on PLM
  8. CRF8

    Anderson Cooper - CNN

    they interviewed a pALs who had the operation done.....Neuralstem's patented technology enables, for the first time, the ability to produce neural stem cells of the human brain and spinal cord in commercial quantities, and the ability to control the differentiation of these cells into mature...
  9. CRF8

    PEG tube draining...?

    we had infections at the suture sites around the PEG hole. we just used q-tips & alcohol or hyd. peroxide to clean it up. We squished them up under the circular plastis peg guard deal. Is the actual peg hole infected in your case?
  10. CRF8

    Wheelchair that can hold a vent

    when it comes time for my wife to need one I would get a Rx from the Dr., and call the wheelchair vendor, thats what they get commissions for. They could order it & install it, if complicted
  11. CRF8

    feeding tube surgery

    we tried to have the PEG installed today as outpatient, but the Dr. couldnt see the light shining thru her skin, nor would the neddles penetrate my wife. Wasted day and a little pain. Now we have to have a surgeon do it the hard way. C & C
  12. CRF8

    vaccine treatment for neurodegenerative disorders

    This should pave the way for researchers to begin follow-up studies on the Parkinson's treatments and open up new opportunities to realize an immunization approach for other neurodegenerative disorders such as Alzheimer's disease and amyotrophic lateral sclerosis (Lou Gehrig's disease)."
  13. CRF8

    Financial Disclosures & SEX-GOT YOUR ATTENTION YET?

    Re: Financial Disclosures It seems a bit high to me, too. We live in Florida and the cost of living is a bit lower than where the ASLTDI people live
  14. CRF8

    bidet shopping help

    any idea why the toto is twice as expensive as the bio-bidet or intimist? so they can make more profit ! we got the bio, especially because we needed NOT white, whish is even more with the TOTO
  15. CRF8

    Basic question about who organizes your care

    I seem to be my wifes medical organizer. Her GP refuses to make any decisions on anything at all related to ALS. The pulmonary Dr. is the majority of our Dr. visits. We found him and a gastro on our own, locally. Her ALS clinic is too far away, we rarely go.
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