BlsdMama's latest activity

  • BlsdMama
    ((Hugs)) Our youngest is also six. PLS is a wait and see diagnosis.... that can be frustrating. Limbo isn’t a fun place to play but slow...
  • BlsdMama
    BlsdMama replied to the thread Pain in Limbs.
    I am like your mother in that I have full sensation. As far as her discoloration -my ALS doc explained it like this: When your muscles...
  • BlsdMama
    BlsdMama reacted to lgelb's post in the thread PLS to ALS with Like Like.
    If you mean progression in ALS is somewhat linear, yes, slow onset usually means a relatively slower progression than the median. But...
  • BlsdMama
    BlsdMama replied to the thread PLS to ALS.
    My apologies - I think I should have been clear - slow progressors with ALS tend to advance at a steady rate that they present and I've...
  • BlsdMama
    BlsdMama replied to the thread PLS to ALS.
    Hugs - the waiting is hard. PLS is generally given as a "probable" diagnosis because they give us four years to convert to ALS before...
  • BlsdMama
    BlsdMama replied to the thread My PALS has become mean.
    DeeDee, What you wrote resonated so deeply with me. Exactly this. All my plans and dreams for the future? Gone. I was hardest on my...
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