TitaniumPike
New member
- Joined
- Dec 26, 2022
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hi all,
I'm full on in the panic spiral and would appreciate any input on others' experiences.
About two months ago I had a sudden, severe attack of vertigo. It's taken this long to recover from the lingering dizzy spells, but about a week after the initial episode, I noticed that my dinner fork seemed heavy in my left hand and my pinky and ring fingers felt...muffled.
Since then, I feel like I'm playing whack a mole with my body. The left hand has what feels like awful tendonitis across the top and the pinky shakes in certain positions. With a wrist brace and some CBD cream, it's all much better.
I've got soreness in both biceps, cramps in both shoulders that lasted for two days but went away, and now my right hand has a stiff, achy middle finger. Just in the last two days my right leg has felt strange and wobbly, like it's going to give out at any second.
I have PT exercises that I do for my legs (hip abduction) that I'm able to fully complete. I have symmetrical DTRs at 3+ that my PCP is unconcerned about.
My husband has watched me very, very carefully and attributes everything I'm experiencing to being terrified for the last two months after the vertigo, but somehow I've convinced myself that this is ALS.
I have been to PCP (same doc I've seen for 20 years). He feels a referral to a neuro is not necessary, says he's seen ALS twice in his career and this is nothing like it. Husband also had a coworker with it and says the same thing.
I've read the sticky post. I know I should trust my doc, and listen to my therapist. But I panic every time a new muscle hurts or a new finger gets achy.
I'm full on in the panic spiral and would appreciate any input on others' experiences.
About two months ago I had a sudden, severe attack of vertigo. It's taken this long to recover from the lingering dizzy spells, but about a week after the initial episode, I noticed that my dinner fork seemed heavy in my left hand and my pinky and ring fingers felt...muffled.
Since then, I feel like I'm playing whack a mole with my body. The left hand has what feels like awful tendonitis across the top and the pinky shakes in certain positions. With a wrist brace and some CBD cream, it's all much better.
I've got soreness in both biceps, cramps in both shoulders that lasted for two days but went away, and now my right hand has a stiff, achy middle finger. Just in the last two days my right leg has felt strange and wobbly, like it's going to give out at any second.
I have PT exercises that I do for my legs (hip abduction) that I'm able to fully complete. I have symmetrical DTRs at 3+ that my PCP is unconcerned about.
My husband has watched me very, very carefully and attributes everything I'm experiencing to being terrified for the last two months after the vertigo, but somehow I've convinced myself that this is ALS.
I have been to PCP (same doc I've seen for 20 years). He feels a referral to a neuro is not necessary, says he's seen ALS twice in his career and this is nothing like it. Husband also had a coworker with it and says the same thing.
I've read the sticky post. I know I should trust my doc, and listen to my therapist. But I panic every time a new muscle hurts or a new finger gets achy.