Hey Everyone,
I have been watching this forum since October, but was unable to post until Al came to my rescue! Thank you Al! I have had bodywide twitching and other symptoms since 1995 and basically came to the understanding that this was the way my body was going to work. I was given a full neuro evaluation and tests at Mayo Clinic in Rochester and was told that all was clear! I had many of what I refer to as "flares" over the years with no significant changes.
Two years ago tomorrow I started another "flare" that has been relentless. I now have twitching, cramping, exercise intolerance, and visable muscular changes. L. Thenar atrophy, a large flat spot on my r. quadricip and l. hip flexor muscle. My husband, who is a physical therapist, has done manual muscle testing and cannot find any clinical weakness. I did have an EMG up and down the muscles of the right side of my body and it was clean. I have tried to keep a level head about all of this, but on most days when I get out of bed I feel like I have been run over by a truck. I am no physician, so I will tell you that what I refer to as "atrophy" has not been diagnosed as such by my neuro, but there is a definite change in the look and shape of the muscle.
I'm just looking for advice. I know there are no answers to some of these mysteries and the age of my young children does not allow me to continue down a path of doctoring all the time. I do look to my husband who is extremely knowledgeable and will graciously test my strength and measure my muscles when I ask, however, I try not to let myself go there very often. I'm just curious if there is anybody else who has had symptoms for this length of time only to have them get worse over time, and if so, what type of tests and doctoring have you had done.
Any replies would be greatly appreciated.
Stacy
I have been watching this forum since October, but was unable to post until Al came to my rescue! Thank you Al! I have had bodywide twitching and other symptoms since 1995 and basically came to the understanding that this was the way my body was going to work. I was given a full neuro evaluation and tests at Mayo Clinic in Rochester and was told that all was clear! I had many of what I refer to as "flares" over the years with no significant changes.
Two years ago tomorrow I started another "flare" that has been relentless. I now have twitching, cramping, exercise intolerance, and visable muscular changes. L. Thenar atrophy, a large flat spot on my r. quadricip and l. hip flexor muscle. My husband, who is a physical therapist, has done manual muscle testing and cannot find any clinical weakness. I did have an EMG up and down the muscles of the right side of my body and it was clean. I have tried to keep a level head about all of this, but on most days when I get out of bed I feel like I have been run over by a truck. I am no physician, so I will tell you that what I refer to as "atrophy" has not been diagnosed as such by my neuro, but there is a definite change in the look and shape of the muscle.
I'm just looking for advice. I know there are no answers to some of these mysteries and the age of my young children does not allow me to continue down a path of doctoring all the time. I do look to my husband who is extremely knowledgeable and will graciously test my strength and measure my muscles when I ask, however, I try not to let myself go there very often. I'm just curious if there is anybody else who has had symptoms for this length of time only to have them get worse over time, and if so, what type of tests and doctoring have you had done.
Any replies would be greatly appreciated.
Stacy