Jbeezy
New member
- Joined
- Feb 4, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- Brooklyn
Hi my name is John, I’ve been having symptoms of what I perceive to be neuromuscular. For about two years, I’ve had a weak cough, which has progressively gotten worse to the point where I can barely get a breath in and strength to expand diaphragm and chest and cough out. I have muscle loss in my chest. Recent EMG with an ALS specialist in NY said “I don’t have ALS right now” I however had chronic denervation in my legs and chest. I am also experiencing loss of muscle in my left hand and some in right. My left hand is developing the atrophy you would see in split hand. The back of hand between thumb and index finger and also the flip side of hand on bottom of thumb, hypothenar I guess. Muscle twitching everywhere except the tongue. Been checked for every disease under the sun. Both neurologically and pulmonary and metabolic and mitochondrial. Anything you can mention, I’ve probably done it and multiple times. All the typical mimics of ALS also. I’m freaked out this really is ALS and not sure combined with other symptoms what other diseases cause muscle loss in that part of hand. Also couldn’t open jars, or even the toothpaste cap. EMG showed some carpal tunnel in that hand but carpal tunnel even when severe not sure it causes atrophy in that spot. Doctor said today, he has to see something more objective and said all we can do is watch and see. But nonetheless, very scared.