dmarkland
New member
- Joined
- Mar 2, 2011
- Messages
- 6
- Reason
- CALS
- Country
- US
- State
- mo
- City
- labadie
I wish I could fly away in this very moment to a magical land. One that did require me to take care of a bwk(big wierd kid). When I originally spewed this out to my partner...that I felt like I was caring raising a bwk...it was funny to both him and me. T was diagnosed in 2010, I let this slip out last year. Now it's not so funny. I'm weary. I'm weary of doing everything...for another adult human being. Blowing his nose, wiping, showering, feeding, peeing, you get it. I didn't sign up for this. I was ready to leave before this amazingly awful diagnosis and then bam...what do I do. I stay because I love this man with all of my heart but I hate, hate this thing that has consumed us, ALS. Yes, there is respite care through ALS, minimal though...so I save that for the time that I feel that I may explode and I can do this no more...but I won't leave for good. I will ride this out to the end. I just pray that I can keep some semblance of me and my spirit that is so strong and that keeps me sane through this ridiculousness of watching the one you love wither away from this insane disease.
Peace and love to all of you living with this...dana
Peace and love to all of you living with this...dana