CAREGIVER ROLL CALL: How's everybody doing?

[brooksea]

Missy,

I hope your Mother's Day and Birthday have gone well! You certainly deserve it!

Keep those muddy waters back, both figuratively and literally, if possible. Stay safe!

 

[Jason's Dream]

We are on the cusp of getting hospice but after ALS clinic yesterday, we got another set back as they want to do 2 modifications on his motorized chair before hospice. Just really needing the help and am soo frustrated. Asked the doc, based on Jason's progression in this terrible disease, how long are we looking at. He said 4-6 months. So I guess this has to be the summer of all summers. Lots to do!

 

[brooksea]

I hope they work fast on the PWC so you can get the help you need!

Very sorry about the suggested prognosis.

 

[Jason's Dream]

Thanks CJ. Just tired and frustrated.

 

[Dave C]

Dave here checking in here. Jennifer has been "home" for 16 months now. Trache, PEG, and a pharmacy of meds. It is stressful, as she has lost all movement outside of her eyes, but we continue to cope. Hope all are doing well.

 

[sadiemae]

Great to hear from you!