Jeff Long
Distinguished member
- Joined
- Jul 21, 2011
- Messages
- 254
- Reason
- PALS
- Diagnosis
- 10/2011
- Country
- US
- State
- NC
- City
- Raleigh
I'd like to start my saying that I am not now, nor do I intend later to attribute every ache & pain to ALS, but as this is new to me I'm a little uncertain of things. Also, I do not intend to come here with every whacky twitch & itch to ask about it! That would get old quick!
Okay, now that those disclaimers are made, I'll ignore 'em and ask away!
To date my speech and mild swallowing problems have been my only issues. I know that'll change and know that I don't know how or when.
This evening I had some unusual pains in my calf and little toe, same leg. In my calf I had what felt like sharp needles (actually thought it was a bug biting me). Happened a few times, was instant and lasted only a few seconds. Later, when I was walking my toe had pains of its own. Best way I can describe it was that it felt like it was being pinched or squeezed-hard- as with pliers. Again, immediate and painful as mess but didn't last long.
So, the next question, (#484 for those keeping track)... is this typical or common as a manifestation of the ALS? I realize we'll all go through this differently, with an unlimited number of issues, but is this familiar to any of you here?
I got to thinking that if this is something else and I get it treated, it'd be akin to ironing the curtains while the house is on fire so the Fire Dept wouldn't think I was messy! But I'm aiming to eliminate or minimize unrelated problems so they aren't more annoying as the ALS progresses.
Fire away, smart people!
Okay, now that those disclaimers are made, I'll ignore 'em and ask away!
To date my speech and mild swallowing problems have been my only issues. I know that'll change and know that I don't know how or when.
This evening I had some unusual pains in my calf and little toe, same leg. In my calf I had what felt like sharp needles (actually thought it was a bug biting me). Happened a few times, was instant and lasted only a few seconds. Later, when I was walking my toe had pains of its own. Best way I can describe it was that it felt like it was being pinched or squeezed-hard- as with pliers. Again, immediate and painful as mess but didn't last long.
So, the next question, (#484 for those keeping track)... is this typical or common as a manifestation of the ALS? I realize we'll all go through this differently, with an unlimited number of issues, but is this familiar to any of you here?
I got to thinking that if this is something else and I get it treated, it'd be akin to ironing the curtains while the house is on fire so the Fire Dept wouldn't think I was messy! But I'm aiming to eliminate or minimize unrelated problems so they aren't more annoying as the ALS progresses.
Fire away, smart people!