newbie

  1. L

    Newbie

    Hi, I just joined and am totally new at this,I was diagnosed on Oct 6 2009.I'm sure after talking to my team that I've already had it for a couple years. So I'm learning to use these forums.So please bear with me. Len;-)
  2. S

    newbie!

    Hi all, i'm new on this forum. i'm usually on plm. My name is Hans koch, i'm 48 years of age, living in Naaldwijk, The Netherlands. I was diagnosed last april after app 1,2 years of having trouble with my right leg. So i have ALS or as i prefer to call it Stephen Hawkings disease, almost 2...
    • spica
    • Thread
    • age als back diagnosed hope introduction newbie sad
    • Replies: 11
    • Forum: New members
  3. E

    Anyone had a spouse leave?

    im a newbie here. i was diagnosed in June 2006. i have 3 children aged 10, 7 (1st marriage) and 2 with current marriage. in early 2007 I progressed rather quick and required more hands on help. he couldn't deal so I had people help me the kids make our meals clean our home etc. in hope that...
  4. M

    Yet another newbie with questions

    Hi, I'm new to this site and am here probably because I've read way too much stuff on the internet and have gotten myself scared silly :lol:. I want to say thank you so much for this forum, it has been an eye-opening place and really helpful. I also want to say that while I have some...
    • maxv
    • Thread
    • ankle arm burning diagnosed diagnosis eye go away helpful information mri muscle newbie pain questions reading scared stiffness swelling symptoms symptoms of als worried
    • Replies: 3
    • Forum: Could this be ALS?
  5. BLPhill

    newbie

    Hello My name is Betty, I have been diagnosed with MND. The drs are not sure yet if it is PLS or ALS, I am hopeing for PLS. I have had this for 2 years and no dr has been able to say what it was until 6 months ago. It started in my left leg, I had frequent falls (still do) and not able to...
    • BLPhill
    • Thread
    • als emg mnd neurologist newbie pls test weakness wrong
    • Replies: 4
    • Forum: New members
  6. K

    Good Morning.....newbie, don't know what's happening to me

    I think I'm at a point in my life now that I'm scared about what is happening to me. About 1 1/2 years ago I started losing my balance and had problems with my eyes. I started going to a neuro who's initial thoughts were MS. 8 MRIs and a spinal tap later no answers. He then thought I had a...
    • karbry1
    • Thread
    • balance biopsy cramps emg eyes kids life muscle muscle biopsy muscles newbie night problems scared test work worried wrong
    • Replies: 10
    • Forum: General discussion about ALS/MND
  7. L4dybugg

    My husband might have ALS

    Hello all I am a newbie here, My name is Lori and I am 41. my husband Andy also 41, is having ALS symptoms. My husband had a first cousin to die form ALS at the age of 34. To start off with, we went to our family doctor so they could refer him to a neurologist. They took a lot of blood work...
    • L4dybugg
    • Thread
    • ability age als als symptoms atrophy back biopsy brain chronic denervation clinical denervation diagnosis emg enzymes family husband motor neuron disease mri muscle muscle biopsy muscles neurologist newbie oil story surgery symptoms testing tests work
    • Replies: 18
    • Forum: Could this be ALS?
  8. F

    Hi Newbie - altho posted the other day but it has not appeared

    Hi All My Mum has recently been diagnosed with ALS and bulbar aged 78. She is currently in rehab care and will shortly be moving to a nursing home. She has been given a prognosis of 5-6 months but her MND nurse says she should never have been given such a deadline ( if you will pardon the pun ...
  9. W

    newbie

    Hi I just posted in the main forum, I think. Perhaps I posted in the wrong place. I think I have PBP, my mother died in 2000 after suffering from it. Need help. Wendi
  10. S

    Newbie Question

    Hello! My docs are sending me to an ALS Center for screening. I have a couple of simple questions. FIrst, I have all ALS basic symptoms (that is why I am being sent for screening) Some days I feel more ambulatory (although I can barely walk on a good day) sometimes I have have little feeling...
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