newbie

  1. KC2U2

    Please allow me to introduce myself...

    Didn't see an area for newbies so thought I'd jump right in. I'm KC and haven't been 100% diagnosed yet, but the neurology residents are in disagreement over it so they have referred me to the ALS clinic for more in depth testing. Preliminary diagnosis was polymyosistis but they've ruled that...
  2. S

    Newbie. Waiting for a diagnosis

    Hi. My first posting on this forum I'll tell you a bit about myself I have been experiencing increased balance and walking difficulties since January I had to take sick leave since may.initially they thought it was a cervical disc problem but then decided my symptoms didn't fit. They are...
  3. K

    23 year old son

    Hello, this is my first post on here, I have been looking through some past threads and already feel better knowing there is so much support and info out there. Everyone here is so supportive and you can really feel the love coming from people who have been through or are going through this...
  4. Raul_Chicago

    New and a little scared. Can u help?

    Hi there, My father who is 69 is in the process of being diagnosed with ALS. I say this because he has seen a Neurologist who says that his symptoms - Muscle atrophy, fasiculations, weakness, tremendous weight loss along with dropfoot and a few others, combined with positive looking nerve...
  5. A

    Newbie Question on Narcatics and ALS

    Newbie Question please I'm very new here so I may post in inappropriate forums. I am an undiagnosed male with many of the early signs of ALS, including 2 dirty leg EMG's and one dirty arm EMG. I have leg and left arm weakness (diagnosed Carpal Tunnel prior to the start of my muscle twitches)...
  6. AKmom

    Newbie with questions....

    Hi All! I have been reading alot of this forum for quite a few days now. I have not officailly been diagnosed with PLS but the more I read the more it sounds like my problem. Please bare with me will explain my plight and then I will ask some questions. I am now 51 years of age but have had...
  7. A

    Puffer / Inhaler Help

    Hi All. Newbie here. Recently diagnosed ALS. Looking for gadgets to make it easier to use my Albuterol / Flovent inhalers ... been on them for years for asthma. Don't have the strength to hold the puffer steady and squeeze it, even with both hands. May have to have a gadget custom made. Anyone...
  8. Chief

    Newbie PLS

    Hello everyone, so happy to find this site. In Oct.05 I was Dx with Acoustic Neuroma (a noncancerous tumor thank GOD!) had it removed and after surgery left me with: Partial facial paralyzation to left side, tear duct in left eye works sporadicly so I struggle with dry eye..... (I am no longer...
  9. LovemyPALS

    Need Support for Newbies

    My dad was diagnosed in 2006. Due to his AWESOME health regimen, he is slow progressing. :p My family has lots of questions. Mostly to be prepared for future situations. He is recently in a wheelchair as much as possible. He can still walk, but struggles and can only walk 10 steps before he...
  10. Zaphoon

    Clearing Any Confusion

    Every now-and-again, a newbie will respond to my old thread, "Undiagnosed Please Read This" and it will suddenly come alive again. In that post, I had just returned from an appointment with a university neurology clinic after having my 2nd round of EMG/NCV testing in less than a month. I was...
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