boyfriend

My boyfriend is newly on vent/trach. At the hospital we were told by an MD that he will not be allowed to eat or drink again (he has a feeding tube). At the L-Tach rehab the speech therapist gave him mashed potatoes and he aspirated them and then got pneumonia. He eventually went to...

I am a caregiver to my longtime boyfriend. He was diagnosed January 2017 with ALS. The disease has been very aggressive and he is now on a vent. He is in rehab and we are working on getting him home (not easy). I'm wondering about life expectancy???

Hi everyone, it's been a while since I've been on here. I stopped coming because it would make so sad every time. It's been about 6 months since my mom passed and I feel like all of a sudden the sadness is hitting me hard now. I feel irritable and a general sense of unhappiness some days. I lash...

I am not going to spend to much time and energy on this because it's not worth it, but just a brief vent here if you cafe to read further. Since nearly the day of Brian's Dx, I have done a Blog on Blogspot that was called "Life, Love & ALS". I have posted maybe twice a month. I think there has...

Hello everyone, I posted awhile ago, but I need to know that I am not the only one feeling like my ALS boyfriend uses his diagnosis as an excuse to not be involved in activities. And please let me explain before anyone thinks I am being selfish. We were together for several years before his...

Hello Everyone, My boyfriend was recently diagnosed with ALS, but he had shown classic symptoms for well over a year. We were ready for the diagnosis, but it was still a heartbreaking moment for us. I am feeling better most days however, I do have moments when I realize he may not be with me...

Hi my boyfriend has been diagnosed with ALS. I am having difficulty finding a diet protocol for this disease. Does anyone have any ideas or pages they can direct me to to find out more please?

My mom passed away today after being diagnosed with ALS last December. 26 years will never be enough time for us to have together but I am happy she is free now. After she lost her ability to walk she was so miserable. I believe that is when she decided it was time to go. She passed away 1...

My boyfriend started with intense pain in the upper portion of his body that then went to numbness tingling and weakness. Dr. said he had brachial neuritis and some cervical nerve damage. Since January he's been in physical therapy but the symptoms continue to grow such as twitches all over his...

I know most people know the answer to this but my boyfriend of 6 years was diagnosed a few months ago and i am still trying to figure all of this out. Its a lot to learn and google isnt always the best source. My boyfreind's hands shake a lot and when he holds them out his fingers like...