I agree trfogey, actually I want to know what happens to all the money raised by the ALS associations around the world? I do not think for a minute they squander it but I feel the funds should be largely designated to tech gear for the patients, vehical's and equipment & financial help for whomever needs it, then any funds left over should go towards research, to help find a cure.
People need help faster than a cure will be found for now & special tech equipment is a MUST for patients, just my thoughts :0)