Forum Related

In order to give a home to those people affected by Benign Fasciculation Syndrome (BFS), we will be launching a BFS Forum.

BFS forum is a community and support forum for people suffering from BFS (Benign Fasciculation Syndrome) and for those who suffer from twitching, tremors, anxiety, and other related syndromes and sicknesses related to BFS and BFS related symptoms.

The community is being transitioned to be completely public facing - allowing access to all those affected by BFS, twitching, tremors, and related BFS symptoms.

As always, we've been hard at work improving our forum.  The recent changes are aimed at usability and performance. 

Here are the highlights.

Performance:

We've recently squashed some bugs and made some improvements to our beloved community.

The biggest fix to the community was improving and automating user upgrades as follows:

With renewed vision and energy, ALS Forums is undergoing major changes this year.  Our aim is to revamp the website to be more engaging and user friendly.  In preparation of upcoming changes a recent system wide update was completed.  As a result of this update there was some downtime last evening for approximately 5 hours.

We've added a new fantastic person to our Moderator group.

Please take a moment to welcome: KarenNWendyn 

Hello my Name is John and I can really use som help and guidance, I’ve never been in such a hole in my life. A week and a half ago Thursday I noticed this twitch in the bottom of my lip and for the most part would not go away. It started to get stressed out about it googling symptoms and what not. Then Monday rolled around and I started to get twitches and soreness everywhere and I mean EVERYWHERE hands,feet,arms,legs, neck ,back chest, side everywhere little suddle twitches you can see and feel. I already suffer from debilitating anxiety and hypochondriac.

I wasn’t sure if I am allowed to comment on threads that look specially designed for PALS or CALS, but wanted to share this article.

I have seen discussions around possible conditions that ‘mimic’ a motor neurone issue and have also seen recommendations that people should seek at least 1 other independent expert to confirm diagnosis.

This article is living proof that mistakes can happen, even in a first world nation like The UK which has an excellent health system.

You might have noticed recently that the website has undergone many changes. It looks different, works a little different, and perhaps you're curious why.  

In this post we'll cover all the changes to the website and the reasons behind the changes.