stages

  1. P

    Intro and a question

    Hi all, My sister-in-law (my brother's wife) is in the last stages of bulbar ALS -- only a bit of movement possible in fingertips and lower legs. She can still talk, but my brother can interpret only about half of what she says. She coughs and chokes on her saliva many times during the day. Her...
  2. A

    Terrified I have ALS, need help!

    I am a 22 year old male with no family history of ALS or neurological disease. I have been to several doctors who have run blood work, a CT scan, and a skin biopsy for my rash. They have all been normal except for a high vitamin b12 level due to multivitamins I was taking according to my...
  3. S

    Sorry to ask....re: suicide

    To CALS: when (in the progression of the disease) and why did your loved one decide on suicide? Or not To PALS: why did you decide against suicide? I realize this is a horrible subject, but I don't know who to talk to about this. I am a 70-year-old newly diagnosed PALS with bulbar onset...
  4. S

    Overwhelmed with fear

    Just diagnosed and I'm terrified. I'm sad that this disease will kill me, but I'm scared about losing control...needing to have someone feed me, clean me after the toilet, etc. Are there any articles or books that any of you can recommend to help me understand the stages of decline and how to...
  5. I

    "Early stages but progressing" he said

    My apologies if this is not the proper thread, however it is my first time coming out from behind the curtain. I have been following and learning about ALS since we first suspected the possibility months prior to receiving a diagnosis. My PAL was confirmed and reconfirmed 5 months ago. On...
  6. D

    Can FTD come in episodes?

    I feel like my Pals has lost his mind this week. His behavior is aggressive impatient paranoid and totally lacking empathy. I've seen this pattern before and then it goes away- it's probably been 6 months since the last "episode". Can it wax and wane like that in the earlier stages? He...
  7. K

    Some thoughts

    Dear all, My name is Kay and I'm based in London. I am not an ALS sufferer but I found out about this disease by Anthony Carbajal's campaign to raise awareness about it. Most watch and even participate in the ALS ice bucket challenge but didn't take the time to actually understand the gravity of...
  8. E

    Could it be ALS?

    Hi I am wondering if you can tell me your thoughts please. I am 35 year old female. I have various symptoms going on. I have burning in my left shin and on walking have foot pain. I can stand on toes and walk on hers but hurts afterwards. I also notice, particularly after eating that...
  9. S

    Is this ALS?

    Hello, In December of 2016, I got engaged to the love of my life. Just prior to that (around August or September of 2016), he reported that he had a "funny feeling" in his left ring finger, then slowly started having difficulty moving it. In December, he had a nerve conduction study done, and...
  10. KimT

    Proof of Pain Needed

    I need help. I need to give my ALS doctor evidence that this disease comes with pain, even in the early or mid stages. Please give me a short post, the type of pain you experience, and the clinic where you were diagnosed. If you want to mention your specific doctor, even better. ALSO...
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