stages

  1. M

    End stages

    It's hard to believe that a month ago my dad was still walking, eating and speaking normally, using his left hand/arm. His progression since then has been astounding. He now has a wheelchair, hospital bed, lift, bi-pap, oxygen to help asthma, cough assist, suction, morphine...the list goes on...
  2. K

    Extending Hospital Stay

    Hi guys, I was wondering if any of you guys had any suggestions on extending a hospital stay. My dad is currently nearing the final stages. He is completely bedridden and has been on a trach for about six weeks. After the trach was done, Kaiser sent him to a subacute facility. However, the...
  3. N

    How quickly does muscle atrophy happen?

    Hey, just wondering about how ALS progresses in the early stages? Is muscle atrophy from ALS noticeable after a week? Like losing 5kgs in two weeks? Would that be consistent with ALS or? Also, does early ALS cause any erectile dysfunction? Also, does muscle weakness come and go in the early...
  4. C

    Newly Diagnosed with Bulbar

    a woman I have been caring for was recently diagnosed with bulbar ALS.... she is in the advanced stages... she has lost sooo much weight and has a lot of difficulty swallowing and talking at this point. Can anyone please give me any tips on caring for her. pls any tips at all would be so...
  5. I

    Is 4/5 strength always pathological?

    Hello, I hope everyone is having a good day. I've been to a neuro for the first time yesterday, I've been experiencig bodywide fasciculations for 8 months and I wanted to get a medical opinion. After doing a very extensive clinical, the neuro told me: "you have pretty good strength, al muscle...
  6. B

    Beating a dead horse or legitimate concern?

    Hello everyone! I realize the "I have twitching! HALP!" questions are Legion on here, and if my symptoms and situation aligned pretty closely with the typical BFS picture I wouldn't post. Unfortunately, however, from the info I've been able to gather my symptoms and situation are a bit out of...
  7. A

    Weak ring finger

    I have noticed tonight that my ring finger on my right hand is slightly weaker than my ring finger on my left hand. When I put my hands on a table and tap those two fingers up and down, my right hand ring finger doesn't tap as hard as the left one. And I can't quite grip as heavy an item (milk...
  8. A

    Does this sound like ALS? Very confused and concerned.

    Hi everyone. I'm a 20 year old female and have been having some weird symptoms lately. So about 2.5 weeks ago I started feeling muscle twitches around my body. I didn't think much of it at the time because I do occasionally experience muscle twitching after workouts, etc. However the next time...
  9. R

    Life update

    Hi everyone, I haven't posted on this forum in over a year now and I've been missing it in my life! My dad was diagnosed with ALS 2 years ago (age 57), and it was around mid-last year that I discovered this forum. It allowed me to connect with people also affected by the disease, who understood...
  10. D

    Attention federal employees

    Nowadays it isn't easy to find health plans with no caps on home health coverage, but if you're covered under a federal employee HMO plan, you should check the plan documents to see if it is a "federally qualified" HMO. No limits on the frequency or duration of visits are permitted on home...
Back
Top