friend

  1. mpnatx

    Tipping

    I don't know if I'm in the minority on this. But lately, tipping has begun to really irritate me. It started about 10 years ago when I walked into a restaurant to pickup my phone order. I went to the register, gave my card, and was given the receipt to sign. It had a tip line on it. I...
  2. I

    Cannabinol through a feeding tube?

    As a help for leg pain and difficulty sleeping, I have turned to cannibus. Just got my card yesterday and have been trying to find a dispensary. I guess that finding one to provide 8:1 which is what the doctor suggested is going to be difficult. Aside from that, I have talked to a friend who...
  3. A

    Seeking communication support for special friend

    A special friend (David) of mine and my husbands is a 17-year survivor of ALS. David currently has a Tobii Dynavox I-15 (with eye gaze interaction – AAC device) speech generating device. His AAC device is calibrated to his eyes. David was able to communicate (with his wife and family, also with...
  4. M

    Fun Stuff To Do When Visiting Friend

    A friend of mine has ALS. He’s having trouble talking now. He can still use his phone to do short text messaging, but doing things with his hands seems difficult. I’m just wondering what kind of activities would be best. We talk when I come, but I was thinking maybe a movie or something too…...
  5. B

    Hello all

    I've followed and appreciated tips and words of comfort for a while now but only signed up in Feb. My wife/best friend was DX in June of 15 at the age of 44 with Bulbar on set, symptoms actually started in Oct of 14. At DX was when we found out that she is the 7th one in the family tree with it...
  6. affected

    Cough assist

    These are almost unknown for ALS in Australia. I have a friend PALS who needs one and they are being told that you must have diaphragm strength and they are only a very short term solution. The PALS is having some distressing episodes where he cannot cough and I'm unable to get any help...
  7. T

    My Sweet Friend

    I want to thank each and everyone who posts on this site, it has been such wealth of information and with that, I was able to support my friend Gretchen in many ways I could not thought of. I did not post much but was here often researching any way I could. Her journey was short with rapid...
  8. H

    Speech problem and several symptoms

    Speech problem and several symptoms Hello everyone I’m Korean, male, and 29 years old (born in 1988). And, please understand my lack of English writing skill. Now, I have been experienced in the several symptoms considered to be the symptoms attributed to MND. Please refer to my symptoms...
  9. S

    Thoughts on Chemical Exposure causing ALS?

    Hi Guys! I am curious how many PALS were exposed to chemicals over an extended period of time. I am also curious to know if anyone has any thoughts on prolonged exposure to chemicals causing this type of neurological disease. Cliff was exposed to many chemicals over his 31 yrs on the job...
  10. S

    Update of double edged sword.

    A very early good morning to you all. If I may reach out to Nikki J, Nikki as promised a further update to our now closed thread of September 2017. Further to your appreciated education, direction and further extensive MND/ALS testing by the neuromuscular specialist at the Walton Centre...
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