friend

Yesterday was Connor's confirmation day. It was sunny, but cold! We were seated at the front of the church, which was different for us. Our surname begins with S, and these things are usually in alphabetical order which means we are up the back! The front row was amazing, we could see...

I managed to become entrapped in another adventure today. I don't see how my wife ever puts up with me:) It started with a nice sunny day and my newly repair wheelchair sitting there with a full charge. What could possibly go wrong? I left the house and wheeled toward Vail, which is about 7...

We lost another pALS in AZ today. Kim Parnell was a very loving wife and good friend. I know she was not on this forum since she was not very technically adept. We became pretty good friends in the short time we knew each other. Her husband, Kevin, is really hurting and has been during this...

Hello- I am new at posting but I have been following along for quite some time. My wife was diagnosed two and a half years ago so I have had the same ups and downs all of us caregivers have had. So far I have been holding my own but today has been a turning point. She is now on home hospice...

Well I guess it was bound to happen. We went out to dinner with a friend last night. I ordered a nice cold pint of beer to go with my meal. As I was about to take my first, glass raising to my mouth, my wrist collapsed and emptied half of the pint down my chest and into my lap. :shock: I guess...

Hi Everyone, I posted back in March asking questions as to how best help my friend with ALS. We live 1000s of miles away from each other, but I wanted to let her know that my thoughts and prayers were always with her. I received some great replies and ideas to let her know I'm thinking of...

Anticipatory grief is a real thing, yet there are no support groups for it. I have asked at a couple Hospices and their grief support groups are only for after the passing. Quickly, my mom is the one with ALS. Bulbar onset so she is still mobile, some difficulty swallowing but basically...

Ever have one of those days? Ever feel useless? Bit of background...if you're a 'local' you attended the same school as your great-great-great....you get it. I'm that kind of local, so it's not that I know a lot of people really, but of them, like the 'jones' family in my story. Three years...

Hi, I have been a member on the forum for many years because I have a dear friend with ALS and have found some helpful information here. She is actually doing fairly well and we are blessed to have her in our lives 15 years after her diagnosis. I am back with a question about another loved...

a friend of mine did send me this article Evidence for Fungal Infection in Cerebrospinal Fluid and Brain Tissue from Patients with Amyotrophic Lateral Sclerosis Abstract of that article Among neurogenerative diseases, amyotrophic lateral sclerosis (ALS) is a fatal illness characterized by a...