feeding

  1. T

    Please, read. Advice needed. Out-of-pocket care options?

    Hello, I’m new to this forum. My mother was diagnosed with ALS in June of 2017. However, we believe her symptoms began a year or more prior. As you all know, it was devastating. My father is her primary caregiver. The ALS Association assists us with a nurse aid for 10 hours per week. We...
    • theotherginger
    • Thread
    • advice als bed caregiver chair diagnosed diagnosis father feeding feeding tube frustrated health hours hoyer hoyer lift insurance life lift symptoms transfer work worry
    • Replies: 7
    • Forum: Current caregivers
  2. N

    my dad got his peg!

    My dad has his peg placed yesterday. He was already week and losing weight and choking so badly - for hours, every single day.... At first I was so happy and relieved.... No more choking, and hopefully he'll become stronger eventually. And it was a miracle he decided that peg was a way to...
    • NotMyDad
    • Thread
    • back choking dad dry mouth eyes feeding food heart hours peg problems saliva suction test
    • Replies: 21
    • Forum: Current caregivers
  3. L

    Jevity via Feeding Tube

    My sister is having an issue with vomiting. I believe it begins with saliva pooling which caused coughing, then gagging which sometimes leads to vomiting (about 3 - 4 times a week). She is taking 2 cans of Jevity via feeding tube around 1 pm and then 1 or 2 cans in the evening around 6 pm. This...
  4. Nuts

    Too Much Gas

    Hey peeps, I need your collective wisdom. We are in the hospital, day 9 post trach/vent. They have had him on a constant trickle feed with the same formula he was tolerating at home (2 cal) , and his stomach and colon are filling with gas that won't move. His stomach gets so distended that he...
    • Nuts
    • Thread
    • back bed feeding hours meds pain problem trach trilogy vent
    • Replies: 10
    • Forum: PEG feeding tube help
  5. Y

    Breathing issues prompting move to skilled care facility. We're scared!

    Hey all, Have only posted once or twice before. I'm the caregiver for my partner, Mike, who has been diagnosed since August 2011. He uses a power chair and a feeding tube (although he's fortunately still able to enjoy a beer every night), a sip and puff respirator as he needs, and we use a...
    • yutopia
    • Thread
    • ability assistive devices baclofen bipap breathing breathing issues caregiver chair clinic cry decline diagnosis early equipment feeding feeding tube guilt heart issues night paralyzed power problem scared sleep support symptoms
    • Replies: 22
    • Forum: Current caregivers
  6. N

    my dad is tortured with saliva/mucus - need advice...

    He wakes up in the middle of the night choking on saliva and nothing helps. I mean - the only thing he tries is cough it out, and of course this doesn't help. His doctor - an anestesiologist with no experience with bulbar ALS, doesn't have any advice. My dad suffers so much he now often says he...
  7. L

    My Dad

    So... I have only posted once after my dad was diagnosed last year. Since that time he and my mom moved in with me. (last July) He has a feeding tube and has been hospitalized 3 times with a variety of issues. He is on a trilogy ventilator with a noninvasive mask. He has lost all speech and has...
    • LeslieR
    • Thread
    • dad diagnosed feeding feeding tube hospice morphine night speech swallow trach trilogy ventilator
    • Replies: 25
    • Forum: Current caregivers
  8. I

    Interventional radiology vs surgery for PEG

    It is becoming apparent that it won’t be long before I will need a feeding tube. I find the physical aspects of how they insert it, but nothing from those PALS who have actually had it done. It sounds very uncomfortable to say the least. Am I just getting squeamish over this? I have no...
  9. L

    Guidance Needed

    My PALS friend has taken a turn, her husband is in the hospital with his own illness, her son is worthless and her caregiver is calling me for advice. As a background, she is not on a bi-pap, does have a feeding tube, only can move her neck and has some speech left. She is on small doses of...
    • littlered
    • Thread
    • advice caregiver family feeding feeding tube friend morphine speech
    • Replies: 11
    • Forum: Current caregivers
  10. R

    Should I get feeding tube now?

    My ALS doctor and others with ALS recommend getting feeding tube while I am still healthy. I was orignaly against it, but am now considering. I have now problem eating now (I weigh 285) and still have 85% lung capacity. What is your opinion? They said it doesn't have to be used until...
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