feeding

  1. L

    My Dad

    So... I have only posted once after my dad was diagnosed last year. Since that time he and my mom moved in with me. (last July) He has a feeding tube and has been hospitalized 3 times with a variety of issues. He is on a trilogy ventilator with a noninvasive mask. He has lost all speech and has...
  2. I

    Interventional radiology vs surgery for PEG

    It is becoming apparent that it won’t be long before I will need a feeding tube. I find the physical aspects of how they insert it, but nothing from those PALS who have actually had it done. It sounds very uncomfortable to say the least. Am I just getting squeamish over this? I have no...
  3. L

    Guidance Needed

    My PALS friend has taken a turn, her husband is in the hospital with his own illness, her son is worthless and her caregiver is calling me for advice. As a background, she is not on a bi-pap, does have a feeding tube, only can move her neck and has some speech left. She is on small doses of...
  4. R

    Should I get feeding tube now?

    My ALS doctor and others with ALS recommend getting feeding tube while I am still healthy. I was orignaly against it, but am now considering. I have now problem eating now (I weigh 285) and still have 85% lung capacity. What is your opinion? They said it doesn't have to be used until...
  5. C

    Tube feeding side effects? Which Formula?

    I have a feeding tube that I currently use for my meds. I see the day approaching where I will need to start using it for nutrition. What are the side effects? Will it be diarrhea after every feed? What formulas are best to reduce diarrhea? Ive heard of gravity feeding and a pump....HELP...
  6. NothingButLove

    From constipation to diarrhea - What should I do?

    In an attempt to get my wife off suppositories, I changed my wife’s diet and have gone from hard rock-like constipation to soupy diarrhea. I need to know where I go from here. Here’s the story… My wife got her feeding tube last year on September 22nd. After a couple of weeks on IsoSource...
  7. M

    Mom doesn't have much time left, her husband not doing anything

    My mom was diagnosed with advanced ALS this past Saturday in Tennessee. I drove up from Alabama. My dad drove down from Michigan. By the time I was able to get here they had already sent her home. I knew her husband is an alcoholic but not to the point he can't care for her. My mom isn't...
  8. D

    What could it be besides ALS?

    Hello everyone. Before I begin I'd like to apologize in advance for potential grammar mistakes because english is not my mother tongue. I'm here because of my friend who has been suffering from symptoms which are very similar to the symptoms of ALS for about a year now. I'll try to describe it...
  9. L

    Feeding tube

    Hi again , my husband Jim has a feeding peg , he is considering a Mickey . Is it a big deal to change them out.? The tape for the dangler is irritating his skin .We have changed tape brands , nothing has helped his skin.He had the tube put in about 3 months ago.Thank you , Dee
  10. A

    feeding tube tissue around stoma

    there is no pain, heat, or redness in skin around the site. however it looks like a bit of tissue has pushed up out of stoma, deep red, bleeds slightly. Is this normal, does it need intervention? Just concerned because have not seen this since placement seven months ago. just keeping it...
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