My husband has had ALS since September 2011. We have been married for 32 years. My son and I both have quit our jobs to care for him. We love him dearly and will do and have done anything and everything for him. He is wheelchair bound, has a feeding tube, and is wearing his BIPAP at night and...
I had been on Jevity 1.5 and was using 2 cans a day as a supplemental feeding not to lose weight. I tried to up that to 4 and the result is lots go gas and my going 8x a day. No diarrhea but can't stop going. Now I can't eat by mouth or take tube feedings. Any help out there?
Hello,
I've been reading past posts on Phlegm and see that there are various methods and suggestions in dealing with it.
Unfortunately, I probably will not be able to use any of them with my PALS.
What I would like to know is whether increase in phlegm and mucous could be/ is likely related...
I am hopeful but so anxious .. Mom gets her feeding tube monday.. They say she will go home that day ,that its a simple procedure .. Is it that simple ? I worry so much about her breathing issues ( she was having a lot of trouble last night .. And of course we still don't have the bi pap ...will...
I had a peg placed two years ago. Bolus feeding. No problems until a few months ago.The hole started bleeding and sporadic pain. Cream helping. Doctor suggested Mic-Key Button. I am not sure.
Any suggestions would be appreciated.
Hi all! It's been awhile since I've posted.
My husband was diagnosed with ALS-FTD in October 2014. He is definitely weaker in body and mind, week by week!
He presented bulbar ALS and personality changes FTD, before a thousand other symptoms kicked in. He just started using a walker when we go...