feeding

  1. T

    Financial problems

    My husband has had ALS since September 2011. We have been married for 32 years. My son and I both have quit our jobs to care for him. We love him dearly and will do and have done anything and everything for him. He is wheelchair bound, has a feeding tube, and is wearing his BIPAP at night and...
  2. N

    Tube feeding

    I had been on Jevity 1.5 and was using 2 cans a day as a supplemental feeding not to lose weight. I tried to up that to 4 and the result is lots go gas and my going 8x a day. No diarrhea but can't stop going. Now I can't eat by mouth or take tube feedings. Any help out there?
  3. J

    Does excess Phlegm and Mucous signify lung issues?

    Hello, I've been reading past posts on Phlegm and see that there are various methods and suggestions in dealing with it. Unfortunately, I probably will not be able to use any of them with my PALS. What I would like to know is whether increase in phlegm and mucous could be/ is likely related...
  4. M

    We go monday ....

    I am hopeful but so anxious .. Mom gets her feeding tube monday.. They say she will go home that day ,that its a simple procedure .. Is it that simple ? I worry so much about her breathing issues ( she was having a lot of trouble last night .. And of course we still don't have the bi pap ...will...
  5. H

    Peg irritation

    I had a peg placed two years ago. Bolus feeding. No problems until a few months ago.The hole started bleeding and sporadic pain. Cream helping. Doctor suggested Mic-Key Button. I am not sure. Any suggestions would be appreciated.
  6. 3

    bipap & feeding tube advice for ALS-FTD

    Hi all! It's been awhile since I've posted. My husband was diagnosed with ALS-FTD in October 2014. He is definitely weaker in body and mind, week by week! He presented bulbar ALS and personality changes FTD, before a thousand other symptoms kicked in. He just started using a walker when we go...
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