diagnosed

SOCIAL SECURITY FIRST VISIT They said it was an identity check . Nothing else i am vet 63 years young, ALS Diagnosed May 2016 quit working last year still fighting

Hi all, I was wondering if anyone has a document/binder to share where all the important information one should know about one's pALS is in one place (contact info for doctors, nurses, etc.; medication list; etc.) I know we should probably have compiled such a thing already given that my...

Mid 30's male, grandmother diagnosed at 73. Began twitching in arm in early December, went away for a few weeks, came back in late December in left calf and r. arm, and felt like it was spreading each week: right calf, thighs, neck etc.. I twitch somewhere in my body every few seconds, for...

I’m sorry to be back but, I feel as if things could be progressing. I’ve noticed what I believe to be muscle wasting of the outer muscles on my right foot. I also have a large “dent” in my calf. My whole leg feels unstable and fatigued. I walk on my instep and I’m afraid this is happening...

Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all over...

Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all...

Hello: My husband was diagnosed this past Dec. He has limb (legs and arms) onset. He is still working and driving. But...he sleeps a lot. Like almost all the time when he is not at work. I'm just trying to be patient with it and I know extreme fatigue is part of this awful disease. I...

Hello all, My father was first diagnosed with lower motor neuron ALS roughly one year ago. He got the official diagnosis in September 2018 when they were finally certain that it was not CIDP. Within the week my Dad was diagnosed, I accepted my first job out of graduate school and moved 2 and a...

Hi I’m brand new to the board I’m a 52 year old male,and have just one question. I have for the past two months experienced body twitches all over,some in my thighs, calves tricep, rib, buttocks and eyelid . I also had one episode upon waking in the morning kinda half way between awake and sleep...

Hi so to start with I’m male age 26 So a few months ago I got rapid heartbeat tachycardia (I know not often a symptom of MND), They found no cardiac explanation, then started getting muscle twitches which I still get sometimes, again no obvious explanation. I noticed a panting in my throat...