diagnosed

Bob had only been diagnosed about 1 month before Easter. He woke up that morning and decided to go to a flea market, saying that he didn’t know how many more he would be able to do. I cancelled Easter plans with my family so I could go with him. I’m so very thankful that I did. We had no way...

My Dad who is 60 an active and daily exercise this entire life was just diagnosed with ALS last week. We are totally devasted and feel completely overwhelmed at the task of trying to slow or better yet stop the progression of this disease. He has 4 children, a wife, 3 young grandchildren that...

hi, since i am diagnosed, i sit at home, go to gym/spa, like i used to do in past 20 years learning about als, read pubmed, alsuntangled... i am not eligible for nurown trial. i am not usa/canada resident, im 50 y old, 210 pounds weight for last 10 years (i felt and i had left elbow luxation...

Hello, I’m new to this forum. My mother was diagnosed with ALS in June of 2017. However, we believe her symptoms began a year or more prior. As you all know, it was devastating. My father is her primary caregiver. The ALS Association assists us with a nurse aid for 10 hours per week. We...

Lately I have noticed that there has been a few posts talking about different people noticing or just stating they feel that their progression seems to have sped up. Here are my thoughts and in the end a question. About 8 months before I was diagnosed, I was working in the mountains in the...

My sweet mother (Sharon Mae) was diagnosed with ALS in 2013 and it completely came unexpected. To make matters worse, we were separated in different states. They said 5-years and it was about that. I had not known she had gone downhill that quickly and was taken by surprise when the care...

Hi, I Am Sherri, my husband has recently been diagnosed with ALS, I am 56 and he is 57 problems started a couple years ago with muscle loss in his hand and a little balance problems approximately June 2016 and now he cannot lift his left arm his left hand is crippled Up and bad balance, his...

My dad was diagnosed in May last year. Within 3 months he was in a wheelchair and 3 months after that his speech started to go. He is now in the end stage - no speech, no arms/legs, and unable to swallow. His FVC was 24% in January. He had been using the trilogy mask at night, but over the last...