diagnosed

  1. E

    Dad's Symptoms after Parkinson's Misdiagnosis

    Hello, I am going to share with you my father's current symptoms. I am a bit worried about him and would like to know your opinions My dad was diagnosed with Parkinson's disease and treated with levodopa for 3 months. Since the drug was not very effective, they did a neural imagining test and...
    • Emanol
    • Thread
    • als balance bed clinical dad diagnosed emg fasciculations father foot ideas lyme lyme disease misdiagnosis muscles pain problems speech symptom symptoms test twitching weakness worried
    • Replies: 22
    • Forum: Could this be ALS?
  2. S

    Update of double edged sword.

    A very early good morning to you all. If I may reach out to Nikki J, Nikki as promised a further update to our now closed thread of September 2017. Further to your appreciated education, direction and further extensive MND/ALS testing by the neuromuscular specialist at the Walton Centre...
  3. P

    Need advice

    My husband was diagnosed 3 weeks ago with ALS. He is declining very rapidly. Hospice is helping us. He is bedbound, unable to move any part of his body except his head. Urine is dark. They said his kidneys are the reason. Appetite is minimal. Speech is almost imperceptible. Coughing and...
  4. J

    Easter 2 years ago

    Bob had only been diagnosed about 1 month before Easter. He woke up that morning and decided to go to a flea market, saying that he didn’t know how many more he would be able to do. I cancelled Easter plans with my family so I could go with him. I’m so very thankful that I did. We had no way...
  5. M

    Stem cell transplants

    My Dad who is 60 an active and daily exercise this entire life was just diagnosed with ALS last week. We are totally devasted and feel completely overwhelmed at the task of trying to slow or better yet stop the progression of this disease. He has 4 children, a wife, 3 young grandchildren that...
    • Meghan98ray
    • Thread
    • als cell children cure dad diagnosed exercise friend life progression stem cell travel work young
    • Replies: 5
    • Forum: Newly diagnosed
  6. jethro

    Now, after all, can I bring my cause of ALS?

    hi, since i am diagnosed, i sit at home, go to gym/spa, like i used to do in past 20 years learning about als, read pubmed, alsuntangled... i am not eligible for nurown trial. i am not usa/canada resident, im 50 y old, 210 pounds weight for last 10 years (i felt and i had left elbow luxation...
    • jethro
    • Thread
    • als als? brain canada clinical data diagnosed diet eye foot heart hours kids love medical mri muscles nurown rilutek symptoms test trial usa wheelchair
    • Replies: 7
    • Forum: General discussion about ALS/MND
  7. T

    Please, read. Advice needed. Out-of-pocket care options?

    Hello, I’m new to this forum. My mother was diagnosed with ALS in June of 2017. However, we believe her symptoms began a year or more prior. As you all know, it was devastating. My father is her primary caregiver. The ALS Association assists us with a nurse aid for 10 hours per week. We...
    • theotherginger
    • Thread
    • advice als bed caregiver chair diagnosed diagnosis father feeding feeding tube frustrated health hours hoyer hoyer lift insurance life lift symptoms transfer work worry
    • Replies: 7
    • Forum: Current caregivers
  8. W

    An Observation and a Thought

    Lately I have noticed that there has been a few posts talking about different people noticing or just stating they feel that their progression seems to have sped up. Here are my thoughts and in the end a question. About 8 months before I was diagnosed, I was working in the mountains in the...
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