Bribri
Active member
- Joined
- Mar 31, 2016
- Messages
- 44
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- Other
- Country
- Us
- State
- Mississippi
- City
- Somewhere
I'm a 26 y/o make it all started around a January of 2015 with muscle twitching all over my body and then I started noticing my muscles burning like if I'm under car working holding my head and arms up they burn of exhaustion. I've also dealt with off and on dizziness and unsteadiness which I know isn't necessary als. I first went to neuro in March 2015 had a MRI of brain clean. June 2015 had eeg he said "it wasn't really abnormal but it wasn't normal either" whatever that meant. He then did some blood work which was all clean then sent me for a emg in October 2015 by a neuromuscular specialist in one limb which he said came back ok didn't really specify. He then referred me to the neuromuscular specialist that did the emg. He took some blood work which all came back clean. My main issues now are the nasal and slurred speech along with saline building while I'm talking making it harder to talk which I haven't got a chance to tell my neuromuscular doc yet I don't get to see him for another 3 months. I'm so scared this is bulbar onset. Here recently I've developed this squeezing spasm sensation in my rib cage that makes it hard to breathe. I've also seen two different pcps about all of this and I've had a lot ruled out. I want to post a picture of my tongue and possibly a video of my speech but not sure how.