Old 04-19-2017, 03:31 PM #1 (permalink)
Member
 
Join Date: 2016
City: Pittsburgh
State: PA
Country: US
Diagnosed: 07/2007
Interest: I am a caregiver for someone with ALS/MND.
Posts: 436
Narrowminded has a spectacular aura aboutNarrowminded has a spectacular aura aboutNarrowminded has a spectacular aura about
Narrowminded Narrowminded is online now
Member
Join Date: 2016
City: Pittsburgh
State: PA
Country: US
Diagnosed: 07/2007
Interest: I am a caregiver for someone with ALS/MND.
Posts: 436
Narrowminded has a spectacular aura aboutNarrowminded has a spectacular aura aboutNarrowminded has a spectacular aura about
Default Very concerned end is near

Hi all we are still having issues and now is eating is almost non-existent. He doesn't want me to call anyone.

Not sure but, I have a feeling his body is shutting down on him.

Hugs,

Sue
Narrowminded is online now   Reply With QuoteReply With Quote
Old 04-19-2017, 04:44 PM #2 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 8,697
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is online now
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 8,697
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: Very concerned end is near

Giving you a hug, then sitting down beside you and holding your hand Sue.

Whatever is happening, we are with you. I hope you can find a place of peace and just give him all the love and comfort he needs now xxx
affected is online now   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-19-2017)
Old 04-19-2017, 04:47 PM #3 (permalink)
Crossfree's Avatar
New Member (Say Hi)
 
Join Date: 2017
City: Charlotte
State: North Carolina
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 7
Crossfree is on a distinguished road
Crossfree Crossfree is offline
New Member (Say Hi)
Crossfree's Avatar
Join Date: 2017
City: Charlotte
State: North Carolina
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 7
Crossfree is on a distinguished road
Default Re: Very concerned end is near

Gods peace
Crossfree is offline   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-19-2017)
Old 04-19-2017, 05:06 PM #4 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 4,145
lgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud of
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 4,145
lgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud oflgelb has much to be proud of
Default Re: Very concerned end is near

Sue,
What Tillie said --we're here for you -- just be fully with him -- there is nothing else.

Best,
Laurie
lgelb is offline   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-19-2017)
Old 04-19-2017, 05:11 PM #5 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 4,990
Nikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud of
♥ Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 4,990
Nikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud ofNikki J has much to be proud of
Default Re: Very concerned end is near

Will hold both of you in my thoughts. Wishing peace and comfort for whatever lies ahead
Nikki J is offline   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-19-2017)
Old 04-19-2017, 05:58 PM #6 (permalink)
Lkaibel's Avatar
Senior Member
 
Join Date: 2016
City: Minneapolis
State: MN
Country: US
Diagnosed: 06/2016
Interest: I am a caregiver for someone with ALS/MND.
Posts: 517
Lkaibel is just really niceLkaibel is just really niceLkaibel is just really niceLkaibel is just really nice
Lkaibel Lkaibel is offline
Senior Member

Lkaibel's Avatar
Join Date: 2016
City: Minneapolis
State: MN
Country: US
Diagnosed: 06/2016
Interest: I am a caregiver for someone with ALS/MND.
Posts: 517
Lkaibel is just really niceLkaibel is just really niceLkaibel is just really niceLkaibel is just really nice
Default Re: Very concerned end is near

My thoughts are with you Sue.
Lkaibel is offline   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-19-2017)
Old 04-19-2017, 06:29 PM #7 (permalink)
Senior Member
 
Join Date: 2016
City: Cleveland
State: Oklahoma
Country: US
Diagnosed: 10/2015
Interest: I am a caregiver for someone with ALS/MND.
Posts: 634
soonerwife is a jewel in the roughsoonerwife is a jewel in the roughsoonerwife is a jewel in the roughsoonerwife is a jewel in the rough
soonerwife soonerwife is online now
Senior Member
Join Date: 2016
City: Cleveland
State: Oklahoma
Country: US
Diagnosed: 10/2015
Interest: I am a caregiver for someone with ALS/MND.
Posts: 634
soonerwife is a jewel in the roughsoonerwife is a jewel in the roughsoonerwife is a jewel in the roughsoonerwife is a jewel in the rough
Default Re: Very concerned end is near

Thinking of you and and your PALS Sue. Hugs!
soonerwife is online now   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-19-2017)
Old 04-19-2017, 06:35 PM #8 (permalink)
Very Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 1,473
KimT is a splendid one to beholdKimT is a splendid one to beholdKimT is a splendid one to beholdKimT is a splendid one to beholdKimT is a splendid one to beholdKimT is a splendid one to beholdKimT is a splendid one to behold
KimT KimT is online now
Very Helpful Member

Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 1,473
KimT is a splendid one to beholdKimT is a splendid one to beholdKimT is a splendid one to beholdKimT is a splendid one to beholdKimT is a splendid one to beholdKimT is a splendid one to beholdKimT is a splendid one to behold
Default Re: Very concerned end is near

Thinking about you, Sue.
KimT is online now   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-19-2017)
Old 04-19-2017, 06:48 PM #9 (permalink)
JimInVA's Avatar
Senior Member
 
Join Date: 2014
City: Poquoson
State: VA
Country: US
Diagnosed: 04/2014
Interest: I am a caregiver for someone with ALS/MND.
Posts: 599
JimInVA is a jewel in the roughJimInVA is a jewel in the roughJimInVA is a jewel in the roughJimInVA is a jewel in the rough
JimInVA JimInVA is offline
Senior Member

JimInVA's Avatar
Join Date: 2014
City: Poquoson
State: VA
Country: US
Diagnosed: 04/2014
Interest: I am a caregiver for someone with ALS/MND.
Posts: 599
JimInVA is a jewel in the roughJimInVA is a jewel in the roughJimInVA is a jewel in the roughJimInVA is a jewel in the rough
Default Re: Very concerned end is near

Sending hugs and gentle thoughts your way, Sue!

My best...

Jim
JimInVA is offline   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-19-2017)
Old 04-19-2017, 06:54 PM #10 (permalink)
Member
 
Join Date: 2016
City: Pittsburgh
State: PA
Country: US
Diagnosed: 07/2007
Interest: I am a caregiver for someone with ALS/MND.
Posts: 436
Narrowminded has a spectacular aura aboutNarrowminded has a spectacular aura aboutNarrowminded has a spectacular aura about
Narrowminded Narrowminded is online now
Member
Join Date: 2016
City: Pittsburgh
State: PA
Country: US
Diagnosed: 07/2007
Interest: I am a caregiver for someone with ALS/MND.
Posts: 436
Narrowminded has a spectacular aura aboutNarrowminded has a spectacular aura aboutNarrowminded has a spectacular aura about
Default Re: Very concerned end is near

Update: his pulse and BP are still up. Just gave xanax again. All I have to offer comfort. He requested oxygen, so yes he's on it. Right now comfort is tops.

Hugs,

Sue
Narrowminded is online now   Reply With QuoteReply With Quote
Old 04-19-2017, 08:15 PM #11 (permalink)
Member
 
Join Date: 2016
City: Oreland
State: PA
Country: US
Diagnosed: 03/2016
Interest: I lost a loved one to ALS/MND.
Posts: 129
Jhill is on a very distinguished roadJhill is on a very distinguished road
Jhill Jhill is offline
Member
Join Date: 2016
City: Oreland
State: PA
Country: US
Diagnosed: 03/2016
Interest: I lost a loved one to ALS/MND.
Posts: 129
Jhill is on a very distinguished roadJhill is on a very distinguished road
Default Re: Very concerned end is near

So sorry for everything you're going through right now.
Comfort is everything!

Hugs to you,
Joan
Jhill is offline   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-19-2017)
Old 04-19-2017, 08:45 PM #12 (permalink)
gooseberry's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: Popopopo
State: All
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,263
gooseberry is a name known to allgooseberry is a name known to allgooseberry is a name known to allgooseberry is a name known to allgooseberry is a name known to allgooseberry is a name known to all
gooseberry gooseberry is offline
Extremely Helpful Member
gooseberry's Avatar
Join Date: 2014
City: Popopopo
State: All
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,263
gooseberry is a name known to allgooseberry is a name known to allgooseberry is a name known to allgooseberry is a name known to allgooseberry is a name known to allgooseberry is a name known to all
Default Re: Very concerned end is near

Ahh Sue, hugs and comfort to you both.
gooseberry is offline   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-20-2017)
Old 04-19-2017, 09:19 PM #13 (permalink)
pdcraig's Avatar
New Member
 
Join Date: 2013
City: oshawa
State: ontario
Country: CA
Diagnosed: 09/2012
Interest: I am a caregiver for someone with ALS/MND.
Posts: 69
pdcraig is on a very distinguished road
pdcraig pdcraig is offline
New Member
pdcraig's Avatar
Join Date: 2013
City: oshawa
State: ontario
Country: CA
Diagnosed: 09/2012
Interest: I am a caregiver for someone with ALS/MND.
Posts: 69
pdcraig is on a very distinguished road
Default Re: Very concerned end is near

So sorry Sue, thinking of you both. Sending you strength and comfort
Paul

Last edited by pdcraig : 04-19-2017 at 09:19 PM Reason: sp
pdcraig is offline   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-20-2017)
Old 04-19-2017, 09:29 PM #14 (permalink)
Member
 
Join Date: 2016
City: Boston
State: MA
Country: US
Diagnosed: 09/2013
Interest: I am a caregiver for someone with ALS/MND.
Posts: 132
KateEmerson has a spectacular aura aboutKateEmerson has a spectacular aura about
KateEmerson KateEmerson is online now
Member
Join Date: 2016
City: Boston
State: MA
Country: US
Diagnosed: 09/2013
Interest: I am a caregiver for someone with ALS/MND.
Posts: 132
KateEmerson has a spectacular aura aboutKateEmerson has a spectacular aura about
Default Re: Very concerned end is near

My thoughts and heart are with you and Brian. Hoping you both are surrounded in love. Kate
KateEmerson is online now   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-20-2017)
Old 04-19-2017, 09:35 PM #15 (permalink)
texastc's Avatar
Member
 
Join Date: 2015
City: Acuff
State: Texas (TX)
Country: US
Diagnosed: 09/2013
Interest: I lost a loved one to ALS/MND.
Posts: 215
texastc has a spectacular aura abouttexastc has a spectacular aura about
texastc texastc is offline
Member
texastc's Avatar
Join Date: 2015
City: Acuff
State: Texas (TX)
Country: US
Diagnosed: 09/2013
Interest: I lost a loved one to ALS/MND.
Posts: 215
texastc has a spectacular aura abouttexastc has a spectacular aura about
Default Re: Very concerned end is near

Prayer for strength and peace for you both.
texastc is offline   Reply With QuoteReply With Quote
Thanks from
Narrowminded (04-20-2017)
Reply

Tags
eating


Currently Active Users Viewing This Thread: 13 (8 members and 5 guests)
Shavan76, KateEmerson, soonerwife, WendyWooG, Nana5xs, Erika, Narrowminded, mdcan1867
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Concerned about ALS Ladypoprocks Do I Have ALS? Is This ALS? 5 01-08-2016 02:36 AM
concerned about ALS rickyx Do I Have ALS? Is This ALS? 2 01-07-2016 04:39 AM
Concerned.. UCLA Do I Have ALS? Is This ALS? 3 02-13-2012 09:12 PM
Concerned. poosmum Do I Have ALS? Is This ALS? 76 02-11-2012 05:03 PM
Concerned Rob1699 Do I Have ALS? Is This ALS? 1 01-01-2011 06:22 AM


All times are GMT -5. The time now is 06:08 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016