amyecpa
Active member
- Joined
- Apr 17, 2010
- Messages
- 53
- Reason
- Learn about ALS
- Country
- US
- State
- LA
- City
- West Monroe
I've made it to Jacksonville and my appt with a Mayo neuro is at 10 tomorrow (EST time). I hope that he goes ahead and does another thorough EMG. Do any of you know how long it takes to get results at Mayo? Is it possible he would say something in the room, right after the test or am I just wishful thinking? I also know that a lumbar puncture will have to be done sometime during this visit. I have a lot of symptoms of MS with no lesions on brain or spine. My symptoms started almost 3 yrs ago so lesions would show up. This did give me peace until I found out that Primary Progressive MS usually shows no lesions. There is no treatment (Disease Modifying Drugs) for that one. Another little tidbit my general neuro never talked about. At this point, I am scared to death. I'm sure I will be a wreck in the AM, but I want so badly to be steeled and not cry. I DO NOT want another doctor writing me off as some emotional woman! At this time, I would greatly appreciate any prayers. There have been so many wonderful people reach out to me from this forum so I will update daily.
Love to all,
Amye
Symptoms: "numbness"/feeling of weakness down right side, fasciculations, head tremor, and involuntary head movements
Love to all,
Amye
Symptoms: "numbness"/feeling of weakness down right side, fasciculations, head tremor, and involuntary head movements