amyecpa

Hi Amye,
Yeah Sorry I haven't checked in. I unfortunately still have no diagnoses. I have had different leads. My thyroid apparently is low .A month ago, I was admitted to the hospital with tacyhcardia b/c of dangerously low potassium.I have had another NCV/ EMG since last and it came back neg. so one positive and one negative. The one that was neg was done by a med student who I did not trust, tortured me during the whole test.I have high doubts that the test was even done correctly. physical therapy has brought no improvement.At this point my doc said he was tired of ordering tests and has gone the easy route of stress. I do have issues with my heart -low pulse less than 40 beats while sleeping and then almost tachycardia rhythm- 160 once I stand up. Plus a sinus arrythmia.
Personally, I am tired of fighting for myself every second of everyday while going through the hoops of the medical system...how are you?

Amy, you OK?

Hi Amy, how did you make out at Mayo Clinic.... hopefully they are still saying BFS!!!!

Amy, How are you?Sore I bet!

Hi Amy, good luck tomorrow. I know it is difficult to harden yourself so as not to be an emotional wreck. I wish I had some magic words to make you strong! I made sure to never mention ALS or MND, and to focus on the lesser (but still problematic) of my differentials: Parkinson's. It helped to keep me away from the dark side, which in turn helped my composure.

Hi Amy, Just checking in on you. I am thinking of you. I hope that you get answers fast. I know the waiting is awful. Take care!

Amy, how are you, sweetie? What is cajebe talking about?When is your appointment with Mayo?

Amy, did you get my PM?

Hi Amy, The doc he would have to peel me off the ceiling if I took it. He said he would give it to someone who had depression and could not get out off bed. How is it working for you?