adozi
Distinguished member
- Joined
- Dec 28, 2011
- Messages
- 233
- Reason
- PALS
- Diagnosis
- 03/2012
- Country
- US
- State
- KY
- City
- Louisville
So i was going to a great multidisciplinary clinic in Nashville, but we moved to Louisville. I assumed all the clinics on the CDC ALS clinic locator were multidisciplinary, so i asked to be transferred to the MDA clinic in Louisville. But it's just a doctor! Why even call it a clinic if he just refers me to a pulmonary specialist and a wheelchair company?
Sidenote: At the time, none of the clinics in Kentucky or Tennessee were listed on the ALS association or the MDA websites. I don't know whether the situation has been rectified now.
Anyway, apparently you have to actually ask if the "clinic" is multidisciplinary or just a doctor. Which is bulls**t, in my opinion. As if pALS and cALS don't have enough to deal with!
Anyway, here is the KY multidisciplinary (truly) clinic info:
ALS association multidisciplinary clinic is located at university of KY. Contact is Patricia Peak at Patricia at alsaky dot org
the clinic i now have an appointment with this month is unaffiliated, but is a joint venture between the university of Louisville and Frazier Rehab. I'm not sure who the contact is, because i found it in a roundabout way, but just call UL neurologists.
The MDA ALS clinic is not multidisciplinary!
Sidenote: At the time, none of the clinics in Kentucky or Tennessee were listed on the ALS association or the MDA websites. I don't know whether the situation has been rectified now.
Anyway, apparently you have to actually ask if the "clinic" is multidisciplinary or just a doctor. Which is bulls**t, in my opinion. As if pALS and cALS don't have enough to deal with!
Anyway, here is the KY multidisciplinary (truly) clinic info:
ALS association multidisciplinary clinic is located at university of KY. Contact is Patricia Peak at Patricia at alsaky dot org
the clinic i now have an appointment with this month is unaffiliated, but is a joint venture between the university of Louisville and Frazier Rehab. I'm not sure who the contact is, because i found it in a roundabout way, but just call UL neurologists.
The MDA ALS clinic is not multidisciplinary!