irismarie
Very helpful member
- Joined
- Nov 21, 2009
- Messages
- 1,386
- Reason
- PALS
- Diagnosis
- 05/2010
- Country
- FR
- State
- tarn et garonne
- City
- valeilles
Right! Got there in wheelchair to find three HUGE steps up to the building with no ramp. REmind you this is to a neurologist! Once inside I find the doorway to the toilets is too narrow for wheelchair access. On finally being called to the man's office, his chairs and table have to be moved to enable the chair to enter!
The tests were horrid as everyone here knows but some were beyond an acceptable pain level. I am normally a brave soul but I shouted out! "Oh", he says. "That's unusual for it to hurt like that".
Finally he decides that my EMG is distinctly abnormal and that the nerves are lost but he does not see that it could be ALS as:
1 - I have not lost any weight (I eat as much as ever and do not move so any weight lost in the leg would be more than compensated - and this has lasted just nine months)
2 - He did not discover any fasciculation.
3 - I have no real pain apart from cramps
From all I read here those do not seem v valid reasons?
When I asked what else it might be, well...........wait for it.........it could be viral
Viral? Starting with a dropped foot and no illness otherwise and gradually spreading till the leg no longer works and the other leg is half way there and I can feel the weakness in my arms even if the .EMG showed nothing - yet.
Don't get me wrong. I'd be over the moon if he could have shown me it was NOT ALS. But this man was a joke and "earned" 160euros in half an hour.
Irismarie, cross.
The tests were horrid as everyone here knows but some were beyond an acceptable pain level. I am normally a brave soul but I shouted out! "Oh", he says. "That's unusual for it to hurt like that".
Finally he decides that my EMG is distinctly abnormal and that the nerves are lost but he does not see that it could be ALS as:
1 - I have not lost any weight (I eat as much as ever and do not move so any weight lost in the leg would be more than compensated - and this has lasted just nine months)
2 - He did not discover any fasciculation.
3 - I have no real pain apart from cramps
From all I read here those do not seem v valid reasons?
When I asked what else it might be, well...........wait for it.........it could be viral
Viral? Starting with a dropped foot and no illness otherwise and gradually spreading till the leg no longer works and the other leg is half way there and I can feel the weakness in my arms even if the .EMG showed nothing - yet.
Don't get me wrong. I'd be over the moon if he could have shown me it was NOT ALS. But this man was a joke and "earned" 160euros in half an hour.
Irismarie, cross.