alligator
Member
- Joined
- Feb 11, 2016
- Messages
- 18
- Reason
- CALS
- Diagnosis
- 09/2010
- Country
- US
- State
- TX-Texas
- City
- san antonio
Dear ALS community,
It has been incredibly hard to describe to family members and friends just how difficult it is to have ALS or caretake for an individual with ALS. Well intention friends and family reference the most famous ALS outlier whom we all know and a ridiculous movie entitled You're not You that romanticizes caretaking (book is better). If you really want to get a more accurate representation of ALS, watch Showtime's Time of Death season one Episode 3. Cheyenne's story is a much better depiction of what ALS does to the body and soul.
It has been incredibly hard to describe to family members and friends just how difficult it is to have ALS or caretake for an individual with ALS. Well intention friends and family reference the most famous ALS outlier whom we all know and a ridiculous movie entitled You're not You that romanticizes caretaking (book is better). If you really want to get a more accurate representation of ALS, watch Showtime's Time of Death season one Episode 3. Cheyenne's story is a much better depiction of what ALS does to the body and soul.