I can still walk (actually wobble in a general direction) using a cane, the dog has learned to get out of the way. I've learned that the cat wants to kill me.
I have learned that there are wonderful people, all over the world, who will drop everything to help us make beautiful memories for our family. We are blessed beyond what I could have ever imagined.
Making these kind of comparisons invites misery. We can always find people both better off and worse off than ourselves. It is all about making the best of what you have.
This started off as an uplifting thread about the unique perspective granted to us as a result of our living and coping with this terrible illness.
I'm learning how many electrical things can be plugged into one outlet...it keeps growing, and I no longer expect we've reached the limit.
How much a friend can love;
How important it is to have an interior life as the exterior parts stop working;
How incredibly much my husband loves me;
How this group of people living all over the world can become family.
How strong joy is, able to return again and again...
Making these kind of comparisons invites misery. We can always find people both better off and worse off than ourselves. It is all about making the best of what you have.
This started off as an uplifting thread about the unique perspective granted to us as a result of our living and coping with this terrible illness.
Since my Mom was diagnosed last month, I've learned..
There is a strength inside me that I never knew existed.
I've learned how important those times of lectures and laughter have been.
I've learned to live every day as if it were my last because you never know what may come your way.
Mostly I've learned that faith can move mountains and if we continue to have faith that there will be a cure for this soon.
Yesterday, I was sitting in my driveway, in my wheelchair, getting some sun. A rabbit hopped up and sat within a couple feet of me, also enjoying the sun. I'm learning there is some joy in being still.
I learned that silence doesnt have to be uncomfortable. Im really glad my PALS has taught me this. I find so many folks ARE uncomfortable with silence. Well not this girl. Not anymore. I now cherish it.
I have been amazed at how many helpful, thoughtful people there are in the world. Everywhere I go people help me. They hold doors, support me when I need it, etc. It has been truly heartwarming to realize this.
I've learned I can endure a lot of indignities and still act/live like everything in fine/normal.
At the age of 56 I understand how the elderly feel getting around in their day to day life.
I have a feeling that no matter what age you are when the decline hits it never is easy to accept or deal with.
Bulbar onset you can no longer suck a shake through a straw. Every time I got the ice cream up to my mouth my soft pallet would give way and let air come in through my nose ie I would loose suction. Torture! Lol you know I tipped the whole cup up and got a face full lol