David, this really is your doctor's job- to find a suitable neuro to refer you to. If they are abdicating that duty, there is an issue. There is no agreement you even have a neuro issue (per your last neuro saying you don't) so it would be hard to recommend a particular neurologist- how can the people here determine what subspecialty is appropriate, given the last neuro you saw says no neurological issue? In addition, the Provincial medical system limits your options with regards to how far afield you go unless there is a particular subspecialty or centre where a diagnosed condition is treated and that specialty clinic is out of area. I don't know how Ontario health billing goes, but a referring doctor needs to justify such an out of area referral here in BC.
I guess you need to find another general neuro in your area and get your gp to refer you to the closest one if you can't accept the last neuro's experienced and professional assessment. I am sure there are a few. A note, the usual rate md sites online do not always provide an accurate picture of the doctor. Many people provide negative reviews because they did not get the answer they wanted from the doctor. One of my specialists has several terrible reviews from people expecting to get a particular diagnosis (they diagnosed themselves via dr google) and they were mad she cleared them. She is, however, an excellent and informative doctor if you have the disease she happens to specialize in.
If this is not acceptable to you, you have the option of going across the border to a neurologist and paying out of pocket. Not sure the closest American city to you, but an online search will help you here. If you are utterly convinced it's ALS, you could try for an ALS centre I guess?
Because you do not seem to fit the pattern of symptoms ALS is known for, this forum should no longer be used as a medical resource. We do have a deep understanding and empathy when answers are hard to come by, but this really is an ALS specific forum and it is here to support those with ALS and their caregivers. After 32 posts from you, it should be clear you have really made the people here work hard and expend a whole lot of energy to help you despite there being very early agreement your symptoms didn't fit the known pattern. We do not have the answers you continue to seek here, no matter how many times you return. Not because members here don't care, but because it's not the appropriate place for you. It's like going to a shoe store and insisting they sell you a shirt and getting upset when they don't have them. And then continuing to return to ask for shirts, no matter how many times they tell you "Sorry, we don't have any shirts. We just sell shoes." I guess you could demand they find you a place that sells shirts and make them do the work to hunt a place down for you- despite their having no idea what kind of shirt best suits you. But is that fair?
