themommy
Active member
- Joined
- May 3, 2012
- Messages
- 82
- Reason
- CALS
- Diagnosis
- 03/2012
- Country
- US
- State
- FL
- City
- Saint Petersburg
I have been at war with SSI. It is the craziest thing I have ever seen in my life. We have the diagnosis. We have all the testing. We have the orders for the cough assist and ventilator (which Michael has a loaner from the ALS closet), but we can't get disability.
Uhhh, lets see Michael - take off that ventilator now and start working! REALLY?! You F$$%%% Moron! Are you kidding? (Sorry for the language - but I have cried myself silly today and well sometimes - you just have to vent!) And have Sangria - which helps my currently frazzled nerves! :lol:
The attorney had it all the way to hearing stage - then SSI kicked it back to the State of Florida for an INFORMAL remand - so that SSI can re-look at their last denial. And the attorney says that is good.
Noooooo...That is not good! I could have drug the Neurologist down to the hearing and let her testify (she hates SSI - which is one reason I really like her!) And it could be done and over with...But noooooo....It is just another way for them not to pay.
My GOD - I cannot image what it would be like if we didn't have the money to pay for all of the stuff that we need! Uhhh Excuse me ma'am - but we will have to repossess that ventilator that your husband is using to keep him alive....
Talk about taking the wind out my sails. I feel like we are going backwards. I hand delivered a letter to my Congressman today to have them intervene on Micheal's behalf. This is the saddest thing that I have ever encountered in my life. And listen LULU - I have had a tough life! So for this to be difficult - it is REALLY REALLY HARD. And emotionally draining.
I want to stage a march on Tallahassee - with all the students at FSU. I told them I would buy beer - if they would march on the Capital in protest!
If the Congressman doesn't do something - I will take out my wallet - and Mike's Liquor Barn will be the proud recipient of my checkbook and all the kegs they have in the cooler. Seriously - a 1000 drunken and disorderly Frat Boys will get their attention. Trust me - it will be pandemonium before its over. I am just so over it!
Grrrrrrr....
Uhhh, lets see Michael - take off that ventilator now and start working! REALLY?! You F$$%%% Moron! Are you kidding? (Sorry for the language - but I have cried myself silly today and well sometimes - you just have to vent!) And have Sangria - which helps my currently frazzled nerves! :lol:
The attorney had it all the way to hearing stage - then SSI kicked it back to the State of Florida for an INFORMAL remand - so that SSI can re-look at their last denial. And the attorney says that is good.
Noooooo...That is not good! I could have drug the Neurologist down to the hearing and let her testify (she hates SSI - which is one reason I really like her!) And it could be done and over with...But noooooo....It is just another way for them not to pay.
My GOD - I cannot image what it would be like if we didn't have the money to pay for all of the stuff that we need! Uhhh Excuse me ma'am - but we will have to repossess that ventilator that your husband is using to keep him alive....
Talk about taking the wind out my sails. I feel like we are going backwards. I hand delivered a letter to my Congressman today to have them intervene on Micheal's behalf. This is the saddest thing that I have ever encountered in my life. And listen LULU - I have had a tough life! So for this to be difficult - it is REALLY REALLY HARD. And emotionally draining.
I want to stage a march on Tallahassee - with all the students at FSU. I told them I would buy beer - if they would march on the Capital in protest!
If the Congressman doesn't do something - I will take out my wallet - and Mike's Liquor Barn will be the proud recipient of my checkbook and all the kegs they have in the cooler. Seriously - a 1000 drunken and disorderly Frat Boys will get their attention. Trust me - it will be pandemonium before its over. I am just so over it!
Grrrrrrr....