- Joined
- Jul 25, 2015
- Messages
- 1,606
- Reason
- CALS
- Diagnosis
- 07/2015
- Country
- US
- State
- tx
- City
- Dallas
This is a question for both PALS and CALS. It is very rare for Steve to talk about his progression and doesn't like to talk about it at all. I could tell something was bothering him tonight so I asked him about it.
He actually told me that he was really stressed out over his breathing and felt he was having panic attacks. He is not to the point where his breathing is really bad. He told me that he has problems sleeping even with the bi-pap because he was afraid of having a problem breathing. He is not Bulbar onset.
We discussed it for a while and both believe a lot of it is in his head at this point. Neither one of us believe that his breathing should be at a major point of concern right now. I do know this is not the first time in the past couple of months that he has had this fear. We discussed him trying the Sertaline for his anxiety and he agreed to try it.
I am not sure how to help or comfort him. I did tell him... that he would not just stop breathing anytime soon. He is still walking some, has limited usage of his hands and his speech is still very good. He does have weakness in his diaphragm and does very little throughout the day except walk back and forth from the bathroom to the couch. He does use his bi-pap every night.
Has anyone experienced this fear before it's really time to? Any suggestions on how
to comfort him and help him. I hate to know that he is this worried and its very hard to talk with him about any fears or progression?
He actually told me that he was really stressed out over his breathing and felt he was having panic attacks. He is not to the point where his breathing is really bad. He told me that he has problems sleeping even with the bi-pap because he was afraid of having a problem breathing. He is not Bulbar onset.
We discussed it for a while and both believe a lot of it is in his head at this point. Neither one of us believe that his breathing should be at a major point of concern right now. I do know this is not the first time in the past couple of months that he has had this fear. We discussed him trying the Sertaline for his anxiety and he agreed to try it.
I am not sure how to help or comfort him. I did tell him... that he would not just stop breathing anytime soon. He is still walking some, has limited usage of his hands and his speech is still very good. He does have weakness in his diaphragm and does very little throughout the day except walk back and forth from the bathroom to the couch. He does use his bi-pap every night.
Has anyone experienced this fear before it's really time to? Any suggestions on how
to comfort him and help him. I hate to know that he is this worried and its very hard to talk with him about any fears or progression?