wendya432
Active member
- Joined
- Jul 10, 2013
- Messages
- 75
- Reason
- Learn about ALS
- Country
- US
- State
- mi
- City
- Davison
I know this is nothing new to you guys, but I just am so frustrated with it lately.
My legs, especially my right leg are just so stiff and sore all the time. Sometimes my feet hurt so bad. Especially the bottom, just feels like the whole thing is cramped up. Any time I try to stretch my arm or hand out different than normal, instant cramps. Like trying to itch my back in a weird spot, or adjusting my clothes even.
I feel like this is just ruling my life right now. Not sure if we need to increase my baclofen or what. I'm on 10 mg 4 times a day. Works well, but maybe not quite enough. I was trying to figure out how much I've progressed since my last neuro appointment... Then got thinking about how much I have since I started baclofen over a year ago. Realized that it has been a lot considering I was no where near this bad, and thinking if I wasn't on baclofen how much worse I would feel. I guess it hit home that things are speeding up a bit.
Just having a little pity party. Muscle biopsy is in a week, appt with neuro is after results come back. I will definitely be bringing up the progression. Maybe he will adjust my meds or something.
Any tips for helping it feel better? I take magnesium. Try to stretch some, but sometimes it just makes it worse. Also seems to set off fascics. No signs of any atrophy though so i think I'm still just UMN.
Thanks for reading if you made it this far. This board is a blessing!
My legs, especially my right leg are just so stiff and sore all the time. Sometimes my feet hurt so bad. Especially the bottom, just feels like the whole thing is cramped up. Any time I try to stretch my arm or hand out different than normal, instant cramps. Like trying to itch my back in a weird spot, or adjusting my clothes even.
I feel like this is just ruling my life right now. Not sure if we need to increase my baclofen or what. I'm on 10 mg 4 times a day. Works well, but maybe not quite enough. I was trying to figure out how much I've progressed since my last neuro appointment... Then got thinking about how much I have since I started baclofen over a year ago. Realized that it has been a lot considering I was no where near this bad, and thinking if I wasn't on baclofen how much worse I would feel. I guess it hit home that things are speeding up a bit.
Just having a little pity party. Muscle biopsy is in a week, appt with neuro is after results come back. I will definitely be bringing up the progression. Maybe he will adjust my meds or something.
Any tips for helping it feel better? I take magnesium. Try to stretch some, but sometimes it just makes it worse. Also seems to set off fascics. No signs of any atrophy though so i think I'm still just UMN.
Thanks for reading if you made it this far. This board is a blessing!