Sille
Member
- Joined
- Jun 11, 2018
- Messages
- 14
- Reason
- DX UMND/PLS
- Diagnosis
- 07/2018
- Country
- CA
- State
- AB
- City
- Calgary
Thank you so much tracyliz,
Your detail is very much appreciated. As someone who is just at the start of this journey I'm just trying to get a handle on what the future will look like.
I know my progression is still in its infancy and I'm yet to be definitively diagnosed. I've had 2 CTs, 2 MRIs, 1 EMG, X-rays galore, ultrasounds and a crap load of blood tests...all negative (except high Cholesterol). All in all on paper I appear to be a perfectly healthy human being. That is what is so frustrating.
Because I'm so new and just at the start I can't help but think what I have is not PLA. So, I'm searching and searching for alternatives. I've created a list of over 50 thinks that produce some of my symptoms but just can't find anything that produces them all. Perhaps I have a few things going on with me.
I guess the search continues as I still have a few years before a true PLS diagnosis.
Your detail is very much appreciated. As someone who is just at the start of this journey I'm just trying to get a handle on what the future will look like.
I know my progression is still in its infancy and I'm yet to be definitively diagnosed. I've had 2 CTs, 2 MRIs, 1 EMG, X-rays galore, ultrasounds and a crap load of blood tests...all negative (except high Cholesterol). All in all on paper I appear to be a perfectly healthy human being. That is what is so frustrating.
Because I'm so new and just at the start I can't help but think what I have is not PLA. So, I'm searching and searching for alternatives. I've created a list of over 50 thinks that produce some of my symptoms but just can't find anything that produces them all. Perhaps I have a few things going on with me.
I guess the search continues as I still have a few years before a true PLS diagnosis.