Hi Lydia- I do not have a diagnosis, either, but I do have increased tone in my calves and spasticity and now I am having some weakness in my ankles. The doctor recommended baclofen for me, but I declined because I can manage at present state. I have fallen twice in the past month and badly sprained my ankle two weeks ago after falling down the stairs. My ankles/feet are doing the opposite-- turning in, and the podiatrist said I was compensating for that by unconsciously shifting my weight to the outer part of the foot. I was not aware that I was doing this, only that my feet/ankles did not feel right and the ankle kept giving out; the podiatrist watched me walking and said I was pronating and my ankles were turning inward. The shoe orthotics do help stabilize my foot, but I do not wear them all the time and I have to be careful walking on uneven surfaces when I do not have them in, or up and down stairs.
Have no idea what is wrong with me at this point. due for a six-month follow-up with neuro in June. negative EMG last June on both legs and one arm.
I read somewhere that you are having trouble with stiffness and pain when driving. Me, too. My ankles have trouble with the up and down of the brake, gas, and clutch pedals, especially on longer drives. have to pull over and stop and stretch the feet out on a drive longer than an hour.
I would advise getting the orthotics-- they really help when worn with a more stable, constructed shoe, especially one like a low ankled boot. I think you can also get special orthopedic shoes, but I have not gone that route yet. not sure what I will do when sandal season arrives. Flip flops are out, that's for sure.
A podiatrist or orthopedist should be able to help.
Sandra