scot123
New member
- Joined
- Jul 4, 2012
- Messages
- 2
- Reason
- Learn about ALS
- Country
- uk
- State
- hants
- City
- south
hi
hopefully i can try and summarise my current state and would love some straight answers as your opinions are valued greatly. back in 2010 i started having some strange symptoms stiffness in spine,legs and hands with cramps in all parts followed with some spasms and minor twitches. became really fatigued and symptoms continued with my right forearm,tricep,delt,shoulder and part of right side of neck wasting.
went to my doctor who referred me to a neuro who then ordered a emg. during the test the doctor who also did my leg said there was something going on in my arm but said i wasnt giving him any "SIGNS" and that it was probably just a bit of nerve damage and to learn to live with it. i was shocked but accepted their opinion[being 28 at the time and was living life] so i tried to carry on working as normal and also working out as i loved training and things slowly progressed...more fatigue...loss of strength...loss of muscle mass....so you push harder to try and keep going as the doctors told you to learn to live with it until recently. THIS IS THE PART I WOULD LOVE A ANSWER FROM YOU GUYS FROM...my symptoms seen to have finally gone over the edge and now its like a faulty gene or something is going mad inside my body working its way round my body just burning cramping the area with some tingling and its wasted spots of my thigh[both] round my lower leg,calf and ankle area[both] and worked its way up to my throat,neck,shoulder area cramping burning tingling them areas and wasting there aswell. its affected my voice with my tongue also cramping and twitching. ITS GOING CRAZY. i am a keen gym goer and i'm currently flooding my body with creatine and whey protein and washing it down with gallons of water to try and volumise the muscle affected. have seen my local doctor and he's sending me to a neuro so i'll see what happens in the future. BUT MY QUESTION IS........does that sound right told to learn to live with nerve damage then slow progression then all of a sudden it goes over the edge so quickly resulting in my whole body going hay wire? anyone else have like this pinball effect where it goes mad cramping,burning,tingling followed by quite visible big twiches? PLEASE RESPOND?
hopefully i can try and summarise my current state and would love some straight answers as your opinions are valued greatly. back in 2010 i started having some strange symptoms stiffness in spine,legs and hands with cramps in all parts followed with some spasms and minor twitches. became really fatigued and symptoms continued with my right forearm,tricep,delt,shoulder and part of right side of neck wasting.
went to my doctor who referred me to a neuro who then ordered a emg. during the test the doctor who also did my leg said there was something going on in my arm but said i wasnt giving him any "SIGNS" and that it was probably just a bit of nerve damage and to learn to live with it. i was shocked but accepted their opinion[being 28 at the time and was living life] so i tried to carry on working as normal and also working out as i loved training and things slowly progressed...more fatigue...loss of strength...loss of muscle mass....so you push harder to try and keep going as the doctors told you to learn to live with it until recently. THIS IS THE PART I WOULD LOVE A ANSWER FROM YOU GUYS FROM...my symptoms seen to have finally gone over the edge and now its like a faulty gene or something is going mad inside my body working its way round my body just burning cramping the area with some tingling and its wasted spots of my thigh[both] round my lower leg,calf and ankle area[both] and worked its way up to my throat,neck,shoulder area cramping burning tingling them areas and wasting there aswell. its affected my voice with my tongue also cramping and twitching. ITS GOING CRAZY. i am a keen gym goer and i'm currently flooding my body with creatine and whey protein and washing it down with gallons of water to try and volumise the muscle affected. have seen my local doctor and he's sending me to a neuro so i'll see what happens in the future. BUT MY QUESTION IS........does that sound right told to learn to live with nerve damage then slow progression then all of a sudden it goes over the edge so quickly resulting in my whole body going hay wire? anyone else have like this pinball effect where it goes mad cramping,burning,tingling followed by quite visible big twiches? PLEASE RESPOND?