Please read and help

[smwelder]

I myself addressed my issues in sept of 2010. diagnosed in oct . as of todays date 01/08/2011 my speech is near gone im in a chair all the time and i can no longer dress myself because my hands are to weak. progression in this sickness is fast and slow no one person is the same. knowing and realizing there is nothing i can do, but to learn as much as i can about als, and prepair myself. because things get worse plan ahead investagate now in diffrent equiptment and supplies you might need in the future such as safty bars in rest room shower ect. just because you dont use things, plan as if you will. its better to have things in place now then try to get them when there really needed. being new to al this ive learned lots from reading the comments on this site. most important thing of all is to learn how to have fun in this new body. when theres no fun in life, life becomes lifeless. we are not alone in this struggle.

 

[jamesmom1]

Hello, well there is no specific diagnostic or blood test that confirm ALS... the come to the conclusion of ALS by signs and symptoms and ruling everything else out... some signs and symptoms include muscle weakness, slurred speach and muscle twitches... I am sorry to hear about your mother but it sounds like they couldnt find any reason for your moms symptoms so they came to that conclusion

 

[abbas child]

4mymom, I was just at another support group where a man posted that his progression had picked up, and was now on the other side. As you have remarked, this is odd, but then, so is having so much happen so fast. If the testing is done well and doctors have determined this to be ALS, none of us here could contradict them.

Meanwhile, I seem to remember that my doctors all had to send testing results and all information to Hopkins, and also my local doctor had to refer me--a heads up if you were planning to call Hopkins yourself. I remember trying to do just that, and how disappointing it was not getting my own appointment.

You're in my prayers,
Ann