Newbie with a list of symptoms.

[David_W]

Happyphysicist-
Like all of us here, I'm so sorry about your diagnosis. As you go about the next few days and weeks, know that there are many folks in this special community who will be pulling for you and your family. I hope you continue to receive from us some of the support, understanding and compassion you need to make the most of things.

Your login name and original post suggests you have a positive demeanor and good sense of humor. Understandably, that part of you may be missing right now; but, I hope all the stress and worry doesn't steal it away completely. Love and laughter are powerful things - hang-on to them.

 

[Al]

Really sorry to hear about your diagnosed. Possibly the second opinion will be better. Just remember, we're here for you if you need us.

AL.

 

[Happyphysicist]

I feel like I have a new family here. I'm sorry I have been so quite. I've been busy fielding calls from friends and family and keeping my wife from falling apart.

 

[Happyphysicist]

We are now past the shock phase. Can anyone recommend some good literature or resources for the newly diagnosed?

 

[michael0314]

I don't have anything new to add, these are the best people in the world for support. I to am newly diagnosed (less than a week) and have found this to be supportive as well as informative. My symptoms started with my voice. I went to an ent specialist first and he looked at my vocal chords and said everything looked normal, referal to pulmanary specialist a month later, found slight problems with my lungs put me on advair no help referal to a GI doctor in a month GI scope showed slight acid reflux scaring lol back to the pulmanary doctor. Did a swallow test and the radiologist called it normal, the speech therapist in on the test said I did asperate when I swallowed the barium pill? Fought for another refferal to a nuerologist who after 9 months in one day gave the auful diagnosis. I was begining to have other symptoms, foot drop, weakness on my right side and muscle twitching and terrible cramping in my muscles. I guess what I'm long windedly getting at is you've either caught it very early or maybe something else is going on. Your story sounds very familiar to mine. Keep searching till you get a for sure diagnosis. Push if you have to and don't give up. I will pray you aren't joining this wonderful group of people as one.

 

[tdamess]

so for this happening to you and Michael , you have still many phases to go Thur but , do not let your minds be kept in despair and searching for anything and everything like i did for my son .... found out my best information here ... two things were said to me
1 - my son was not going to die today or tomorrow , and als does not have to be fatal ..... 2 - enjoy each other and live and have fun as much as you can ( well that's what he meant forgot exactly how he said it ) and to find the cure or what will really help will be posted here immediately

 

[sadiemae]

https://www.alsforums.com/forum/als...yotrophic-lateral-sclerosis-center-video.html This is a good video, watch all 3 parts.. Here is another thread https://www.alsforums.com/forum/tips-tricks-gadgets/13394-101-hints-mda-publication.html and another https://www.alsforums.com/forum/gen...73-wonderful-info-doc-we-seeing-tomorrow.html