dorsia
Member
- Joined
- May 26, 2016
- Messages
- 14
- Reason
- Learn about ALS
- Country
- swe
- State
- sweden
- City
- gothenburg
Hi! I must start to tell you all that my english is terrible!! I understand everything I read but I'm so bad at writing and speak my self. I hope you all will understand what I'm writing.
I am 37, female that for one year ago had my second child. After the birth i noticed I had some tingling feeling in the skin of my left leg and where to the doctor for a check up. I also felt very stiff in my feet when I woke up in the mornings and had problems just go to the bathroom. That stiff feeling was getting better after a few steps.. The doctor send me to a orthopedic and he was sending me to MRI for check of my back. He found som brisk reflexes in my left knee. The MRI came back clean and an other orthopedic was checkin my reflexes again and he said it was normal.
He was sending me to an neurologist so they could rule out MS he said just because of the feeling in my skin.
The time went on and that strange feeling disappeard. But for about 4-5 month ago the twitching started. First in my leg. It feelt like a bubbling sensation. It then start spreading to my tigh. And it was then i saw the fasciculation for the first time. Then i started to spread all over my body. I feel it constantly!! It jumps around from my feet, leg, butt, back, fingers, arms...everywere. The neurologist couldn't say why but send me to an MRI of the brain and a neurofysiologi-test...eng? They all come back normal. Next week they sending me for an EMG.
I was with the neurologist today and she said that the EMG is the last thing they will do. Then Iam clear. But when I was showed my hands today and told her I was worried about the left hand was thinner than the right she agreed and said "yes your hands look like someone that can have ALS but you are also very thin all of you so I can't tell."...And yes twitches are a sign for ALS but don't worry . Just wait for the EMG.
o my god!! Im so freaking out and feel terrible. Just crying all day long after this meeting. Can i have atrophy in my hands without feeling weak!?
I don't know what I want with this. I have read on this forum for some time and I don't want to make any of you all feel bad because I know you all struggling!! Im just in panic! How do you know it atrophy and not just how you normally look? She told me "I'm not gonna lie to you, it looks atrophy" ...Maybe i could link a picture later on...
I am 37, female that for one year ago had my second child. After the birth i noticed I had some tingling feeling in the skin of my left leg and where to the doctor for a check up. I also felt very stiff in my feet when I woke up in the mornings and had problems just go to the bathroom. That stiff feeling was getting better after a few steps.. The doctor send me to a orthopedic and he was sending me to MRI for check of my back. He found som brisk reflexes in my left knee. The MRI came back clean and an other orthopedic was checkin my reflexes again and he said it was normal.
He was sending me to an neurologist so they could rule out MS he said just because of the feeling in my skin.
The time went on and that strange feeling disappeard. But for about 4-5 month ago the twitching started. First in my leg. It feelt like a bubbling sensation. It then start spreading to my tigh. And it was then i saw the fasciculation for the first time. Then i started to spread all over my body. I feel it constantly!! It jumps around from my feet, leg, butt, back, fingers, arms...everywere. The neurologist couldn't say why but send me to an MRI of the brain and a neurofysiologi-test...eng? They all come back normal. Next week they sending me for an EMG.
I was with the neurologist today and she said that the EMG is the last thing they will do. Then Iam clear. But when I was showed my hands today and told her I was worried about the left hand was thinner than the right she agreed and said "yes your hands look like someone that can have ALS but you are also very thin all of you so I can't tell."...And yes twitches are a sign for ALS but don't worry . Just wait for the EMG.
o my god!! Im so freaking out and feel terrible. Just crying all day long after this meeting. Can i have atrophy in my hands without feeling weak!?
I don't know what I want with this. I have read on this forum for some time and I don't want to make any of you all feel bad because I know you all struggling!! Im just in panic! How do you know it atrophy and not just how you normally look? She told me "I'm not gonna lie to you, it looks atrophy" ...Maybe i could link a picture later on...