AzBabs
Active member
- Joined
- Aug 30, 2012
- Messages
- 63
- Reason
- PALS
- Diagnosis
- 08/2012
- Country
- US
- State
- AZ
- City
- Glendale
Hello All,
My heart goes out to all with this devestating disease. I was diagnosed this week with Bulbar onset ALS at Barrow Neurological Institute. So far I have slurred speech with tongue atrophy, weakness, & fasciculations. First noticed mild speech changes last September. In the past month I have started having frequent fasciculations in my arms and legs. I'm still able to eat, drink, and communicate orally. I have very mild weakness in my right arm.
I am trying to organize a family vacation to Disney World for next March. I am hoping I am still able to walk and possibly eat at that time. What do you think my chances are for this to happen? I am an RN (25 yrs experience) and have no problem getting a PEG or Trach.
Can any one help with this? Should just like to plan ahead. BTW I live in Phoenix and would like to drive to Florida with my parents to visit family in Texas and Mississippi. Hubby & kids will fly down to meet up w us. Am I being unrealistic.
Thank you so much for any responses.
My heart goes out to all with this devestating disease. I was diagnosed this week with Bulbar onset ALS at Barrow Neurological Institute. So far I have slurred speech with tongue atrophy, weakness, & fasciculations. First noticed mild speech changes last September. In the past month I have started having frequent fasciculations in my arms and legs. I'm still able to eat, drink, and communicate orally. I have very mild weakness in my right arm.
I am trying to organize a family vacation to Disney World for next March. I am hoping I am still able to walk and possibly eat at that time. What do you think my chances are for this to happen? I am an RN (25 yrs experience) and have no problem getting a PEG or Trach.
Can any one help with this? Should just like to plan ahead. BTW I live in Phoenix and would like to drive to Florida with my parents to visit family in Texas and Mississippi. Hubby & kids will fly down to meet up w us. Am I being unrealistic.
Thank you so much for any responses.