CaymanIslands2009
New member
- Joined
- Nov 22, 2016
- Messages
- 1
- Reason
- Loved one DX
- Country
- US
- State
- TN
- City
- Gallatin
New here
My husband of 21 yrs was dx Oct 2015. He had symptoms in 2014 and started stumbling and falling in 2015. By Nov 2015, he could no longer dress, feed, or drive. I had to pack and sort our home and put it up for sale, so we could move closer to ALS Clinic. He is now on hospice and youngest son deployed 2 weeks ago.
I was only one caring for husband until hospice help. I haven't left his side because I don't want to miss time he has with me. I know I need to get out of home as he progresses, but I struggle with guilt for leaving him.
He is hardly eating or taking fluids now. Just at a loss for what has happened..he was 44 at dx and sons raised..thought we would travel and spend time together...such is life.
My husband of 21 yrs was dx Oct 2015. He had symptoms in 2014 and started stumbling and falling in 2015. By Nov 2015, he could no longer dress, feed, or drive. I had to pack and sort our home and put it up for sale, so we could move closer to ALS Clinic. He is now on hospice and youngest son deployed 2 weeks ago.
I was only one caring for husband until hospice help. I haven't left his side because I don't want to miss time he has with me. I know I need to get out of home as he progresses, but I struggle with guilt for leaving him.
He is hardly eating or taking fluids now. Just at a loss for what has happened..he was 44 at dx and sons raised..thought we would travel and spend time together...such is life.