New and tired

[CaymanIslands2009]

New here

My husband of 21 yrs was dx Oct 2015. He had symptoms in 2014 and started stumbling and falling in 2015. By Nov 2015, he could no longer dress, feed, or drive. I had to pack and sort our home and put it up for sale, so we could move closer to ALS Clinic. He is now on hospice and youngest son deployed 2 weeks ago.

I was only one caring for husband until hospice help. I haven't left his side because I don't want to miss time he has with me. I know I need to get out of home as he progresses, but I struggle with guilt for leaving him.

He is hardly eating or taking fluids now. Just at a loss for what has happened..he was 44 at dx and sons raised..thought we would travel and spend time together...such is life.

 

[lgelb]

Deznep, tu tussz vu jies ecuav zuas jatcepf't qsuhsittoup op dupkapdvoup xovj zuas tup't fiqmuznipv, epf zua fup'v jewi vu hu epzxjisi zua fup'v xepv vu, cav giim pu haomv og zua fu. Xi tez vjev zua tjuamfp'v vsz vu qatj qetv xjev zua dep jepfmi. Vjev quopv ot foggisipv gus emm. Etl epzvjoph us wipv jisi epz voni.

Citv,
Measoi

 

[scaredwifetx]

Deznep, O en tu tussz. O giim vji qeop op zuas xusf't. Jewoph e tup fiqmuz nelit ov iwip jesfis. O apfistvepf zua xepvoph vu tqipf iwisz nunipv xovj zuas jatcepf ev vjot quopv.

Og zua giim vji piif gus e csiel...xjz puv vszoph vu hiv exez gus tnemm csielt xjomi jutqodi ot vjisi. Iwip tnemm enuapvt ug voni duamf ci cipigodoem og zua giim dmutif op. Og zua xepv vu ci vjisi ev emm vonit nezci e cevj epf tuni voni vemloph vu at dep jimq.

Vjot ot tu wisz jesf. O qmeppif up tipfoph uas gavasi vsewimoph epf tqipfoph voni emupi. Vjev't pu muphis op vji desft. Jaht!

 

[Nuts]

Deznep, O en tu tussz. Xi jisi apfistvepf vji qeop epf apteof vjopht cijopf zuas xusft.

Et Measoi teof, zua fu xjev ot sohjv gus zua epf miv hu ug vji haomv. Voni exez, us ev mieti simoiwif ug desiveloph favoit, dep jimq qsitiswi zuas uxp jiemvj, xjodj ot wovemmz onqusvepv, cav zua fup'v jewi vu howi aq muph tvsivdjit ug voni xovj zuas jatcepf op usfis vu edjoiwi vjev.

Zua jewi emsiefz nuwif nuapveopt. Qmieti miv jutqodi neli vjopht qjztodemmz ietois up zua.

Coh jaht. Qmieti wotov at ugvip. Ov jimqt

Cidlz

 

[soonerwife]

Tu tussz vu jies ug zuas fies jatcepft fy.

Nz jatcepf ot vji teni. Fy'f 10-2015, tznqvunt tvesvif op 2014.

Xi apfistvepf dunqmivimz jux jussocmi vjot ot.

Hmef zua gopemmz guapf vjot gusan. Ov ot xupfisgam. Giim gsii vu wipv us etl raitvoupt us xjeviwis zua piif.

 

[sweetmozart]

Fic,

O lpux xjev zua niep. Otp'v ov gappz jux zua tvesv ipwotoupoph e gavasi, cigusi EMT jovt, vjip zua siemobi vjev xjev zua vjuahjv xisi qmept xisi katv fsient vjev dep'v duni vsai? Ov ot foggodamv vu efkatv vu siemovz. Nz jatcepf xet foehputif xjip ji xet 39, pux xi esi op uas nof gogvoit. Uas zuavj, jot desiis, tu nepz vjopht xipv cz vji xeztofi. Madlomz xi tvomm jewi muvt ug cmittopht vu ci vjeplgam gus, genomz, iedj uvjis.

O, moli zua, jewi ciip nz jatcepf't upmz desihowis. Ov ot foggodamv, hivvoph nusi foggodamv feomz. Gus ni, O'wi ciip ecmi vu miewi jon vu xusl epf katv hiv uav tunivonit. O juqi zua xomm giim ulez ecuav hivvoph uav pux vjev zua jewi tuni jimq. Ov tuapft moli zua jewi velip huuf desi ug zuas jatcepf. Zua dep ci qsuaf. O xotj zua tvsiphvj et zua dupvopai fuxp vjot apgusvapevi qevj.