- Joined
- Jul 25, 2015
- Messages
- 1,606
- Reason
- CALS
- Diagnosis
- 07/2015
- Country
- US
- State
- tx
- City
- Dallas
The below post is MY opinion of why we are all here and losing anyone who is kind and supporting is another loss we all suffer. May I also add that I hope to read all posts of support and not be singled out in any group.
Janelle, while I understand why you need to leave, I want you to know that it saddens me deeply for so many reasons to see one more loving and compassionate person leave because of your faith. You are compassionate, kind, loving and have always been uplifting. That faith, love and spirit should not be modified or moved to a separate post because of how you believe. I admit that I don't go to the house (fear of mod) anymore and I struggle at times with faith. I certainly believe and it does not bother me in the least that posters here share few words here and there, that others do not agree with or understand. That happens with a lot of subjects here and they are not moved or mod. OUR WORDS HERE OF ANY KIND IS HOW WE HELP EACH OTHER.
This forum is not just about dealing with the medical side of ALS. There are so many emotional issues that are shared and supported on this forum and quite frankly is why I come here each day. What we do here is exactly what we all should do. it should all be about compassion, love and support no matter how it's shared. There are posts we all don't agree with but we are not told that we are being moved to a post that singles out anyone.
I do understand the reason for modification at times but really disagree with what happened in your case. I read your post a couple of days ago and was upset that anything at all was said about it. I did not see anything that was shared that shouldn't be READ by all. We have been told time and time again if we don't like something don't read it. Why should we be banned to a thread that singles us out by the way we believe.
My husband and best friend do not share my thoughts of afterlife and do not share my faith (are we allowed to use the word faith). We have managed to share our life for over 16 years. Why? Because like the wonderful people here we love, respect and support each other. I haven't tried do or say anything to ever make him uncomfortable and he has never once disrespected my faith.
I hope you do sign in one more time as well as the others I have watched bow out. I want you to know that I am proud of you. I just wish you did not feel you have to leave. I never once thought there was any reason to move anything you have shared. I can also say that if my post is sent to mod or moved, I will be right behind you. I would hate for that to happen because I truly admire and love everyone on here and could care less about their personal choices. I am not here to defend mine or to preach (bad word) to anyone else. I am here because ALS entered my life and forever changed me. We entered a select club that bites big time and I need the support of everyone just as others do.
To have to fear saying one or two words that someone does not agree with is disappointing. Sorry for the rant and if this offends anyone I am also sorry. I just cannot tolerate any form of discrimination in posts that are mean't to be supportive. I also agree that we never should try to change ANYONE'S beliefs. I agree with moderation but think you should take your personal beliefs out of the picture if you are a moderator. One or two words of (F), cant use that word to much, should bother anyone here. We have a lot bigger things to worry about and at this point should be strong and caring enough to ignore that parts of posts we do not believe in.
I have copied this post just in case it goes to mod land and doesn't come back. I can cut and past in private messages to all the wonderful people I met on here. I do care about each and everyone of you but I also have to support my convictions as I have lost enough the past few months and I have needed the support of all the CALS and PALS here. I
f you are a moderator please think about this fairly and don't single anyone out by moving the for one or two words. It is disheartening and embarrassing to have to read your words and be called out for a couple of inspirational words. Every time I tell someone they are in my thoughts on here I fear offending by adding the other word. I have enough fear in my life.
Janelle, while I understand why you need to leave, I want you to know that it saddens me deeply for so many reasons to see one more loving and compassionate person leave because of your faith. You are compassionate, kind, loving and have always been uplifting. That faith, love and spirit should not be modified or moved to a separate post because of how you believe. I admit that I don't go to the house (fear of mod) anymore and I struggle at times with faith. I certainly believe and it does not bother me in the least that posters here share few words here and there, that others do not agree with or understand. That happens with a lot of subjects here and they are not moved or mod. OUR WORDS HERE OF ANY KIND IS HOW WE HELP EACH OTHER.
This forum is not just about dealing with the medical side of ALS. There are so many emotional issues that are shared and supported on this forum and quite frankly is why I come here each day. What we do here is exactly what we all should do. it should all be about compassion, love and support no matter how it's shared. There are posts we all don't agree with but we are not told that we are being moved to a post that singles out anyone.
I do understand the reason for modification at times but really disagree with what happened in your case. I read your post a couple of days ago and was upset that anything at all was said about it. I did not see anything that was shared that shouldn't be READ by all. We have been told time and time again if we don't like something don't read it. Why should we be banned to a thread that singles us out by the way we believe.
My husband and best friend do not share my thoughts of afterlife and do not share my faith (are we allowed to use the word faith). We have managed to share our life for over 16 years. Why? Because like the wonderful people here we love, respect and support each other. I haven't tried do or say anything to ever make him uncomfortable and he has never once disrespected my faith.
I hope you do sign in one more time as well as the others I have watched bow out. I want you to know that I am proud of you. I just wish you did not feel you have to leave. I never once thought there was any reason to move anything you have shared. I can also say that if my post is sent to mod or moved, I will be right behind you. I would hate for that to happen because I truly admire and love everyone on here and could care less about their personal choices. I am not here to defend mine or to preach (bad word) to anyone else. I am here because ALS entered my life and forever changed me. We entered a select club that bites big time and I need the support of everyone just as others do.
To have to fear saying one or two words that someone does not agree with is disappointing. Sorry for the rant and if this offends anyone I am also sorry. I just cannot tolerate any form of discrimination in posts that are mean't to be supportive. I also agree that we never should try to change ANYONE'S beliefs. I agree with moderation but think you should take your personal beliefs out of the picture if you are a moderator. One or two words of (F), cant use that word to much, should bother anyone here. We have a lot bigger things to worry about and at this point should be strong and caring enough to ignore that parts of posts we do not believe in.
I have copied this post just in case it goes to mod land and doesn't come back. I can cut and past in private messages to all the wonderful people I met on here. I do care about each and everyone of you but I also have to support my convictions as I have lost enough the past few months and I have needed the support of all the CALS and PALS here. I
f you are a moderator please think about this fairly and don't single anyone out by moving the for one or two words. It is disheartening and embarrassing to have to read your words and be called out for a couple of inspirational words. Every time I tell someone they are in my thoughts on here I fear offending by adding the other word. I have enough fear in my life.