ALSBurger
Member
- Joined
- Oct 2, 2012
- Messages
- 16
- Reason
- Learn about ALS
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- US
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- Bizness
- City
- Nonya
Phew - where to begin? I am 38 years old. Never really sowed my wild oats. Moved to an extremely social city, and had some fun for awhile. Just one or two nights a week on weekends. Got involved in Adderall (only 5mg extended release) with heavy drinking one night a week. For about 24 months I did ecstasy about once every couple months. Grand total of roughly 40 times. I have not done ecstasy now for over a year and a half though. Never had any real problems with it even when I stopped. Just got bored of it. Adderall 5mg however once every weekend for the last 2 years. Both are forms of amphetamine, though 5mg is a dose that even little kids take on a *daily* basis. I was doing it once a week to offset the drowsiness from alcohol. Still... its an amphetamine.
Healthy lifestyle otherwise. Very healthy eating. Gym all the time. Slim and fit.
Took a trip to Thailand to see friends and had the worst luck possible. One evening met a girl, was with her sexually, and the next day paranoia got me asking if we could go get tested. We did and she came back positive for HIV.
I was immediately put on the most toxic medications known to mankind (that also keep people with HIV alive). AZT and Kaletra. Double anti-retroviral thearpy as post exposure prophylaxis. 10 pills a day for 28 days, to abort any HIV infection I may get.
It worked. Thank God. But the medications screwed me up royally.
At this same time coincidentally I had decided to get the Hepatitis B vaccine and just finished my 3rd shot. A vaccine well known for causing problems, potentially MS ...
My health was perfect before all of this. But after the HIV meds i would have constant bouts of extreme fatigue, and signs of blood disorders (exactly what the meds are known for). It would come and go, and I was in the doctor constantly, getting retested for HIV and being told that the toxic drugs just did a number on me. I began developing major problems in the hot weather - bodywide tingling and prickling. Fatigue and malaise. If I was even slightly tired it would come on with a vengeance.
I am now exactly 6 months post medications, and recently lost a lot of weight. Found a swollen gland in my groin with no doctor explanation. And have developed muscle twitching and daily migraines that are concerning me. I was in the grocery store the other day and the top of my left foot felt like pins and needles, followed by about a half hour of that "coming back awake" coolness.
Much larger muscle groups are spasming out of control now. The back arm muscle I have flops back and forth as it spasms. The larger muscle between my finger and thumb, causing my finger to literally bend towards my thumb, sometimes holding there for a second or two before releasing. Weird locations I have *never* had any twitching like this before in my life. Back of my calves - tiny little spasms. Elbows. the side of my head above my ear while im trying to sleep.
This has been going on for a solid 2 weeks along with the migraines.
I don't have any weakness that I am aware of. I definitely have lsot a lot of weight but I also dropped caffeine and sugar completely from my diet. I was on coQ10 for a couple months and dropped that this month as well as resveratrol and PQQ .... also stopped ALA which I was taking. Im down to just a multivitamin and vitamin C.
I dont know if any of the first 3 paragraphs is relevant. But my health hasn't been the same since the HIV meds and Hep B Vaccine. I dont know if any of this relates to the Adderall .... but the twitching adderall can bring usually only lasts for a day after, and its tiny, irrelevant stuff. Nothing like this.
The drugs I took cause peripheral neuropathy and i had it very bad while I was taking them. And AZT is known for causing things like lymphoma and MS ... But doctors say my dose was too short to do any harm.
In any case I have an appointment scheduled with a neurologist but he cant see me until the 17th (2.5 weeks from now). Guess this will give me time to see how it changes, or doesnt change.
Healthy lifestyle otherwise. Very healthy eating. Gym all the time. Slim and fit.
Took a trip to Thailand to see friends and had the worst luck possible. One evening met a girl, was with her sexually, and the next day paranoia got me asking if we could go get tested. We did and she came back positive for HIV.
I was immediately put on the most toxic medications known to mankind (that also keep people with HIV alive). AZT and Kaletra. Double anti-retroviral thearpy as post exposure prophylaxis. 10 pills a day for 28 days, to abort any HIV infection I may get.
It worked. Thank God. But the medications screwed me up royally.
At this same time coincidentally I had decided to get the Hepatitis B vaccine and just finished my 3rd shot. A vaccine well known for causing problems, potentially MS ...
My health was perfect before all of this. But after the HIV meds i would have constant bouts of extreme fatigue, and signs of blood disorders (exactly what the meds are known for). It would come and go, and I was in the doctor constantly, getting retested for HIV and being told that the toxic drugs just did a number on me. I began developing major problems in the hot weather - bodywide tingling and prickling. Fatigue and malaise. If I was even slightly tired it would come on with a vengeance.
I am now exactly 6 months post medications, and recently lost a lot of weight. Found a swollen gland in my groin with no doctor explanation. And have developed muscle twitching and daily migraines that are concerning me. I was in the grocery store the other day and the top of my left foot felt like pins and needles, followed by about a half hour of that "coming back awake" coolness.
Much larger muscle groups are spasming out of control now. The back arm muscle I have flops back and forth as it spasms. The larger muscle between my finger and thumb, causing my finger to literally bend towards my thumb, sometimes holding there for a second or two before releasing. Weird locations I have *never* had any twitching like this before in my life. Back of my calves - tiny little spasms. Elbows. the side of my head above my ear while im trying to sleep.
This has been going on for a solid 2 weeks along with the migraines.
I don't have any weakness that I am aware of. I definitely have lsot a lot of weight but I also dropped caffeine and sugar completely from my diet. I was on coQ10 for a couple months and dropped that this month as well as resveratrol and PQQ .... also stopped ALA which I was taking. Im down to just a multivitamin and vitamin C.
I dont know if any of the first 3 paragraphs is relevant. But my health hasn't been the same since the HIV meds and Hep B Vaccine. I dont know if any of this relates to the Adderall .... but the twitching adderall can bring usually only lasts for a day after, and its tiny, irrelevant stuff. Nothing like this.
The drugs I took cause peripheral neuropathy and i had it very bad while I was taking them. And AZT is known for causing things like lymphoma and MS ... But doctors say my dose was too short to do any harm.
In any case I have an appointment scheduled with a neurologist but he cant see me until the 17th (2.5 weeks from now). Guess this will give me time to see how it changes, or doesnt change.