Laine Irene
New member
- Joined
- Mar 30, 2015
- Messages
- 4
- Reason
- CALS
- Country
- US
- State
- California
- City
- Lakewood
This is my first post on this forum. My son, who is 35 years old was diagnosed with ALS
the end of January. It is so new and so overwhelming to all of us. I feel so helpless
sometimes and when I see him my heart breaks. He has slurred speech, lot of muscle
loss. He can walk some with a walker but very little. I am not working so I have been
taking him to doctor visits, etc. He lives in an apartment with his fiance' who works
during the day. My biggest concern is what happens when he can no longer stay by
himself during the day and can no longer walk and needs daily care. There doesn't seem
to be any apartments that have walk in showers or disability facilities. It is frustrating.To watch my child go through this has been so very difficult. I pray a lot to help me to be
strong for him. Anxious to hear from other moms going through this.
the end of January. It is so new and so overwhelming to all of us. I feel so helpless
sometimes and when I see him my heart breaks. He has slurred speech, lot of muscle
loss. He can walk some with a walker but very little. I am not working so I have been
taking him to doctor visits, etc. He lives in an apartment with his fiance' who works
during the day. My biggest concern is what happens when he can no longer stay by
himself during the day and can no longer walk and needs daily care. There doesn't seem
to be any apartments that have walk in showers or disability facilities. It is frustrating.To watch my child go through this has been so very difficult. I pray a lot to help me to be
strong for him. Anxious to hear from other moms going through this.