notme
Extremely helpful member
- Joined
- Apr 3, 2011
- Messages
- 2,605
- Reason
- PALS
- Diagnosis
- 08/2011
- Country
- US
- State
- Fl
- City
- Orlando
Welcome to the definition of my newly named syndrome. It's named "CAN'T SYNDROME"
It is characterized by the following signs/symptoms, in no particular order.
1. Can't use hands without cramping
2. Can't walk without falling
3. Can't clip my own fingernails--no strength to do so (literally, which sucks)
4. Can't sit without back pain.
5. Can't breathe without oxygen
6. Can't sleep without drugs
7. Can't type without hands cramping into God-awful contortions
8. Can't put on shoes that aren't slip-on
9. Can't hold legs still due to spasms
Anyone else have CAN'T SYNDROME?
The folks on the ALS side are lots worse off--their list of 'cant's' is much larger than mine.
Here's what I "Can" do...
I can show any doctor on the planet what a positive Babinski sign looks like
I can show any doctor what spastic legs look like
I can show any doctor what hand cramps and spasms look like
I can show any doctor what hypothenar/thenar atrophy looks like
I can show what hypertonia looks like
I can show any doctor what hyper reflexes look like
So maybe I should name it the "Can/Can't Syndrome" instead....hmmmm decisions....
(This is meant to inject a little humor based on something Johnny Liverpool said in another thread)
It is characterized by the following signs/symptoms, in no particular order.
1. Can't use hands without cramping
2. Can't walk without falling
3. Can't clip my own fingernails--no strength to do so (literally, which sucks)
4. Can't sit without back pain.
5. Can't breathe without oxygen
6. Can't sleep without drugs
7. Can't type without hands cramping into God-awful contortions
8. Can't put on shoes that aren't slip-on
9. Can't hold legs still due to spasms
Anyone else have CAN'T SYNDROME?
The folks on the ALS side are lots worse off--their list of 'cant's' is much larger than mine.
Here's what I "Can" do...
I can show any doctor on the planet what a positive Babinski sign looks like
I can show any doctor what spastic legs look like
I can show any doctor what hand cramps and spasms look like
I can show any doctor what hypothenar/thenar atrophy looks like
I can show what hypertonia looks like
I can show any doctor what hyper reflexes look like
So maybe I should name it the "Can/Can't Syndrome" instead....hmmmm decisions....
(This is meant to inject a little humor based on something Johnny Liverpool said in another thread)