ruthiep
Distinguished member
- Joined
- Feb 28, 2011
- Messages
- 174
- Reason
- Loved one DX
- Diagnosis
- 01/2011
- Country
- US
- State
- AL
- City
- Enterprise
As silly as it sounds, how the heck do you put the diagnosis on the “back burner”? Scott was diagnosed in January 2011, so we’ve have 8 months to digest the news. I keep waiting for the night that I actually sleep “all night” without the need to wake up and touch him. I’m waiting for the morning that I wake up and not think about the upcoming changes in our lives. I seem to be scared 24/7 of what’s to come....! Seems like the majority of our conversations seem on focus around this darn disease----new roof....cooktop on stove replaced....new flooring....life insurance....trip in December to Key West! Damn, it’s like we’re trying to get it all in NOW. Our 3 ½ year old grandson wants to sleep with us every night-no problem—he thinks his Yaya has hung the moon and all the stars! Is it best for our grandson----probably not! I’m trying to find a way to “FIT” this disease INTO our lives without it controlling OUR lives. I’m having some difficulty in this arena and would truly appreciate all words of wisdom and experience. Thoughts and hugs to all!
Ruth
Ruth