Roadkill,
I think you have me mixed up with someone else. I had not received any sort of response from you in any form, from any message I have ever sent to you. We have not corresponded, other than me sending you messages.
I agree completely with you in that this is not the venue to discuss the specific problems that you have. I only responded publicly to you in this thread because I felt it unfair to characterize this forum as a whole, as being uncaring toward you. And really, in retrospect, after reading the outpouring of support you'e received within this thread, it was unnecessary for me to do this.
It seems your circumstances are even more difficult for you in that you find yourself alone trying to cope with everything. I wish you only the best, and, again, I strongly urge you to contact Stu again. He has the resources to help you, if you will let him.
Phil,
I too have mixed emotions about this. I was surprised when my son was so outspokenly in favor of me extending my time by any means possible. (the rest of my family has not said that much one way or the other, other than they want me to "stay") He was talking about eye gaze software, and other options out there , explaining I would never be bored passing the time throughout my days. But, I don't know how much of "me" I am willing to lose, and how much of a burden, whether or not its called that, I want to be for those who love me. Thankfully my progression is slow, and I'm able to keep putting off a lot of thought about this. A great part of my weakness to date is voice, swallowing and breathing related, so it makes it easier, but yet harder. Easier, because I am able to do so many things for myself still. Maybe not as well as I used to do, but its still me doing it. More difficult because obviously we all need to breathe, and I will have to make up my mind about venting. I'm sure we all would love a crystal ball, just to know what to expect and plan accordingly.
I would not consider suicide for myself, but that is as far as my feelings go on the subject. What someone else choses for themselves is their choice. Its good to take into consideration the effect this action would have on those left behind though. And, if suicide is something one feels is an option, it would seem like one should prepare their family ahead of time.