alsventer
Member
- Joined
- Mar 12, 2008
- Messages
- 12
- Reason
- Loved one DX
- Diagnosis
- 01/1983
- Country
- US
- State
- in the
- City
- Going Nuts
My Mom has been on a vent for 25yrs. Dad was her Primary Caretaker but is now incapacitated himself in a nursing home and will never be able to take care of her again.
She has some LPN care and my sister & I do the rest. We both work & have families and have been running ourselves into the ground for the last year. We are neglecting our own families, suffering from stress related illnesses, and we just cannot go on like we are now. We have tried to find help but have had no success.
My question is...now that Dad is not in the picture can she be taken to a Hospice? We have researched the nursing home issue and the closest one is across the state. Do ALS patients ever go to Hospice with vents?
Mom is in her early seventies and has said that if Dad goes she's not far behind. She is healthy and it seems she could go on & on. Do ALS vent patients have advance directives? What if she wants to go....can she? Is that suicide? We don't want our Mom to die but her life was all about Dad and now he's not here. She has had a good life all these years but it's just not the same now.
She has some LPN care and my sister & I do the rest. We both work & have families and have been running ourselves into the ground for the last year. We are neglecting our own families, suffering from stress related illnesses, and we just cannot go on like we are now. We have tried to find help but have had no success.
My question is...now that Dad is not in the picture can she be taken to a Hospice? We have researched the nursing home issue and the closest one is across the state. Do ALS patients ever go to Hospice with vents?
Mom is in her early seventies and has said that if Dad goes she's not far behind. She is healthy and it seems she could go on & on. Do ALS vent patients have advance directives? What if she wants to go....can she? Is that suicide? We don't want our Mom to die but her life was all about Dad and now he's not here. She has had a good life all these years but it's just not the same now.